Cancer Support Organizations

This is one BIG list of cancer support organizations. Here you’ll find organizations supporting specific types of cancer, organizations offering financial aid, patient matching services, meditation, transportation, wigs, and on and on. Some organizations are duplicated in several categories.  We hope you’ll easily find what you need — please let us know of any changes we should make or if you have any problems or questions. hotline@blochcancer.org or 800-433-0464.

At the moment, there are around 350 organizations listed. You can SORT the list by clicking a column heading, and limit displayed organizations to those containing any SEARCH term you enter.

Category
Organization
Description
AbdominalPMP PalsThe PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter
831-424-4545 pmppals@yahoo.com
pmppals.org
AdrenalUniversity of Michigan Cancer CenterEndocrine Oncology Program
Gary D. Hammer, M.D., Ph.D., Director 734-615-4551, 734-647-8906
cancer.med.umich.edu/...l
AdrenalAdrenocortical CarcinomaInformation on treatments, cancer centers that have adrenocortical carcinoma, including names of doctors and links and/or email addresses. Also have a closed group for patients, doctors and researchers accessible by invitation only. Established by the founder of the Beverlin Adrenocortical Carcinoma Research Fund at M.D. Anderson, whose wife had adrenal cancer.
beverlin@ix.netcom.com
adrenocorticalcarcinoma.com
AmputationL.E.A.P.S. Across the HeartlandAssists amputees with the loss of a limb by helping the individual through example and educational resources. Links to other amputee organizations
816-361-3206 angelfire.com
AmputationAmerican Amputee FoundationProvides information, self-help materials, and referral services.
501-835-9290 americanamputee.org
AnalThe HPV and Anal Cancer FoundationDedicated to empowering anal cancer patients and accelerating prevention and research methods that eliminate anal cancer and the virus that causes the majority of cases, HPV.analcancerfoundation.org/
AppendixPMP PalsThe PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter
831-424-4545 pmppals@yahoo.com
pmppals.org
BladderBladder Cancer WebcafePresents information on current treatment options for bladder cancer in an unbiased way, and to help direct users to further information via the Web on the subjects that concern them. blcwebcafe.org/
BladderBladder Cancer Advocacy NetworkConnect with others dealing with bladder cancer through an online community, accessible through the website.

bcan.org/
BladderUrology Care FoundationDedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs.
800-242-2383
urologyhealth.org
BladderSociety of Urologic OncologyWebsite has an online member referral service
847-264-5901
societyofurologiconcology.org
Bone Marrow & Stem Cell TransplantationBlood and Marrow Transplant Information NetworkPatient-friendly handbooks, quarterly newsletter, links with patients and survivors for emotional support, online directories of resources, U.S.& Canada transplant centers, and drugs used during transplant. Attorney referrals for insurance disputes.
888-597-7674 (Answering machine, must leave a message)847-433-3313 bmtinfonet.org/
Bone Marrow & Stem Cell TransplantationAmerican Society for Blood and Marrow TransplantationGuidelines for clinical centers, training and searchable texts of articles.
847-427-0224 asbmt.org
Bone Marrow & Stem Cell TransplantationNational Bone Marrow Transplant LinkPeer support for patients, families and caregivers, plus information, resources, video, booklets. Partner hospitals: Children's Hospital of Michigan City of Hope Cancer Center Dana-Farber Cancer Institute Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance Henry Ford Transplant Institute Karmanos Cancer Institute Mayo Clinic Memorial Sloan-Kettering Cancer Center Northside Hospital OHSU Center for Hematologic Malignancies University of Michigan Comprehensive Cancer Center University of Minnesota Medical Center, Fairview Blood and Marrow Transplant Program The University of Texas M. D. Anderson Cancer
  • Quick answers to common questions.
  • In-depth information on a wide range of related subjects.
  • Practical support for everyone affected by the transplant process.
  • Links to useful online resources.

800-546-5268 (800-LINK-BMT) nbmtlink.org
Bone Marrow & Stem Cell TransplantationNational Marrow Donor Program - Be the MatchThe National Marrow Donor Program® (NMDP) operates the Be The Match RegistrySM and partners with a global network of leading hospitals, blood centers, cord blood banks and laboratories. As a leader in the field of marrow and cord blood transplantation, the NMDP facilitates transplants worldwide, conducts research to improve survival and quality of life, and provides education to patients and health care professionals. Together with its fundraising partner, Be The Match FoundationSM, the NMDP is dedicated to creating an opportunity for all patients to receive the transplant therapy they need. Since operations began in 1987, the NMDP has provided more than 35,000 transplants to help give patients a second chance at life. For more information, visit BeTheMatch.org or call 1 (800) MARROW-2. Congressionally authorized network maintains a national computer database of available tissue-typed marrow donor volunteers. Printed information for patients and caregivers available. Provides financial assistance for patients who need help with costs. Funds medical research
800-627-7692 (800-MARROW-2), 888-999-6743 Patient advocacy line marrow.org
Bone Marrow & Stem Cell TransplantationHeart of America Bone Marrow Registry - Be the Match - A program of the National Marrow Donor ProgramInformation to potential donors, patient advocacy, insurance information, transplant centers, help to initiate treatments.
800-654-1247
Bone Marrow & Stem Cell TransplantationBMT Support OnlineWeekly online support groups for patients/survivors and caregivers.
bmtsupport.org
Bone MetastasisThe Paget FoundationBone and Cancer Foundation is now a program of the Paget Foundation for Paget's Disease of Bone and Related Disorders. Information and referrals for people whose cancer has metastasized to the bone, particularly in breast,  prostate, lung, as well as other types. Some physician referrals as well.
800-237-2438 (800-23-PAGET) boneandcancerfoundation.org
BrainMeningioma Tumor Listfor meningioma patients and their caregivers. This list is run by Johns Hopkins Medical Center's Radiosurgery Department. You need not have undergone radiosurgery to subscribe. To sign up, visit the link below and Look for the "Connect! Join the Meningioma List" graphic and enter your e-mail address. You'll receive an e-mail confirmation. radonc.jhmi.edu/...
BrainMeningioma Mommasan online support group for women with a meningioma

meningiomamommas.org/
BrainChildren's Brain Tumor FoundationResource guide (English/Spanish) for parents of children with brain or spinal cord tumors, newsletter, family-to-family support, funds research, and co-sponsors phone and internet conferences for families, survivors and healthcare professionals.
866-228-4673
cbtf.org
BrainNational Brain Tumor SocietyPatient services and support for brain tumor research
800-770-8287 800-934-2873 (patient services)
braintumor.org
BrainKansas City Brain Tumor Support GroupCancer patients and family meet monthly with professionals and persons who have experienced brain tumors to discuss diagnostic procedures, treatments, common problems, etc. Meets at 7 p.m. on the 2nd Tuesday of the month across from St. Luke's Hospital in the boardroom of the Specialists in Cancer Care Office, Medical Plaza III, 4321 Washington, Suite 4000, Kansas City, MO.
816-932-6220
BrainThe Meningioma Listfor men and men with a meningioma. Hosted by The Healing Exchange BRAIN TRUST. To subscribe go to www.braintrust.org/meningioma.htm

braintrust.org
BrainMeningioma Support and Information Lista message board, chat room, and news announcement for those interested in meningiomas. Visit as a guest and register

meningioma.webexone.com
BrainBrain Trust - The Healing ExchangeInformation and online support groups for brain tumor patients, families and supporters.
617-623-0066
braintrust.org
BrainBrain Injury Alliance/Michael Quinlan Brain Tumor Foundationeducational, emotional, financial and spiritual services. The foundation provides financial assistances for Indiana and Kentucky
Cindy Rosser, Support Coordinator 493-0609 x 27 cindy.rosser@biak.us
biak.us/node/182
BrainPediatric Brain Tumor FoundationSupports the cause and cure of childhood brain tumors through funding medical research, provides patient and family support, resource and educational materials, advocates for increased awareness, hosts series of worldwide internet conferences to provide information and support to families, and provides scholarships to pediatric brain tumor survivors.
800-253-6530
pbtfus.org curethekids.org rideforkids.org
BrainAmerican Brain Tumor AssociationProvides publications on different types of tumors and a booklet, "Primer of Brain Tumors." Has list of support groups nationwide and list of doctors involved in investigative treatment for both children and adults. Also has pen-pal program for patients.
800-886-2282, 847-827-9910
abta.org
BreastBreast and Cervical Cancer ProjectShow-Me Healthy Women, MO Dept. of Health. Provides free mammograms and Pap smears to uninsured and underinsured. Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations.
573-522-2845
health.mo.gov...
BreastNational Breast Cancer CoalitionAction & advocacy group
800-622-2838, 202-296-7477
stopbreastcancer.org
BreastIn My Sister's CareA national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
212-802-7686, 202-607-1883
inmysisterscare.org
BreastBreast Cancer Foundation of the Ozarks, SpringfieldProvides short-term non-medical financial assistance for residents of southwest Missouri and the 4 state region. Provides free mammography screenings, children's fund, and support groups.
417-862-3838, 866-874-1915, Fax: 417-862-3830
bcfo.org
BreastBreastcancer.orgMedical information

breastcancer.org
BreastNational Breast Cancer FoundationFounded by breast cancer survivor, goal is increasing awareness of breast cancer through education and by providing mammograms for those in need.

nationalbreastcancer.org
BreastSusan G. Komen for the Cure800-462-9273 (800-I'M-AWARE) komen.org
BreastSupport ConnectionBreast & ovarian hotline and telephone support group
800-532-4290
supportconnection.org
BreastFORCE (Facing Our Risk of Cancer Empowered)Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer. Also has peer-to-peer matching service.
866-824-7475 (RISK)
facingourrisk.org
BreastReach to RecoveryKansas City area local program sponsored by American Cancer Society. Trained volunteers visit women who have had surgery for breast cancer and will provide information about breast reconstruction for those who request it. Nationally, contact nearest ACS chapter or cancer.org
913-432-3277
cancer.org
BreastSharePrograms for breast cancer patients and their families, helpline staffed by peer counselors, library, support group information.
866-891-2392
sharecancersupport.org
BreastMothers Supporting Daughters with Breast CancerNational organization formed by a mother-daughter team. Publishes a handbook for mothers and a brochure for daughters that are provided to assist these family members in helping each other.
410-778-1411
mothersdaughters.org
BreastYoung Survival Coalition (Kansas City)Group of young breast cancer survivors with affiliates in Kansas City and some other communities.
Sami Papacek 913-742-8846 ysckansascity@youngsurvival.org
youngsurvival.org
BreastYoung Survival Coalition (Kansas City Matches)Point of Contact Program - Kansas City Matches for patients under age 45
913-579-4454 reneelthomas@aol.com
youngsurvival.org
BreastYWCA USAHelps medically underserved women in need of early detection through its ENCORE Plus program, education, breast and cervical cancer screening, and support services.
800-222-4738
ywca.org
BreastYoung Survival Coalition Group of young breast cancer survivors (National)
877-972-1011
youngsurvival.org
BreastMy Pink PlannerFree online service that helps friends coordinate meals and other support for breast cancer patients.
Dolores Quinn Kitchin 816-674-7760
mypinkplanner.com
BreastSisters Network Inc.African-American breast cancer survivorship organization, individual/group support, community education, advocacy and research
713-781-0255, 866-781-1808
sistersnetworkinc.org
BreastTriple Negative Breast Cancer FoundationInformation and anecdotal stories from patients/survivors

tnbcfoundation.org
BreastBreastCancer.netLearn about the latest news and breast cancer developments. breastcancer.net
BreastInflammatory Breast Cancer Help PageThis website provides helpful information for the recently diagnosed IBC patient, caregivers and survivors. The site provides information on treatment and resources as well as a mailing list. ibcsupport.org
BreastLiving Beyond Breast CancerOrganization dedicated to empowering women affected by breast cancer to live as long as possible with the best quality of life. 610-645-4567. lbbc.org
BreastABCD-After Breast Cancer DiagnosisABCD can provide constantly improving exceptional breast cancer support services because of teamwork. Passionate and well-trained volunteers who are supported by committed, knowledgeable staff who are, in turn, led by a Board of Directors and counseled by a Medical and Community Advisory Board. 414.977.1780. abcdbreastcancersupport.org
BreastMetastatic Breast Cancer NetworkRaises awareness of metastatic breast cancer by putting a public face on the metastatic experience. We give those living with stage IV disease a greater voice and visibility in the breast cancer community, the medical community, the research community, and with the public-at-large. mbcn.org/
BreastSharsheretSupports young Jewish women and their families facing breast cancer. sharsheret.org/
BreastPink-LinkOnline breast cancer support network. pink-link.org/
CanadaCanadian Cancer Societycancer information services, peer support, local community services, local offices
888-939-3333, 412-961-7223 - National office cancer.ca
CanadaHope & CopeSurvivor matching, support, patient education, wigs (etc.), quarterly magazine (bilingual, English/French) and more at Jewish General Hospital, Segal Cancer Centre
514-340-8222, Ext. 8255 HopeCope ENGLISH or HopeCope FRENCH
CanadaCarcinoid NeuroEndocrine Tumour Society of CanadaProvides information on carcinoid-specific support groups in Canada and conducts workshops.
416-544-8467 cnetscanada.org
CarcinoidCarcinoid NeuroEndocrine Tumour Society of CanadaProvides information on carcinoid-specific support groups in Canada and conducts workshops.
416-544-8467
cnetscanada.org
CarcinoidCarcinoid Cancer FoundationMedical, testing and drug information for carcinoid patients, encourages and supports research and education on carcinoid-related neuroendocrine cancers.
888-722-3132
carcinoid.org
CarcinoidSusan Anderson's Carcinoid InfoArizona carcinoid survivor's site with lots of information, resources, survivor stories.
SunnySusan@Cox.Net
carcinoidinfo.info
CarcinoidCaring for Carcinoid FoundationCommitted to supporting cutting-edge scientific research and bringing leading researchers together in order to accelerate progress. caringforcarcinoid.org/
Caregivers & SupportersFriends' Health ConnectionFriends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.
800-483-7436 48friend.org
Caregivers & SupportersNational Alliance for CaregivingHelps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information.
caregiving.org
Caregivers & SupportersKidscopeOnline publications available for download. Basic information about what to expect and how children cope with issues surrounding a parent's disease and treatment
kidscope.org
Caregivers & SupportersFamily Connections Program, Dana-Farber Cancer Center, BostonIdentify and respond to the needs of parents and children through supporting, supplementing, and empowering parent and child coping as a family. Resources and relevant information offer guidance to help families manage the impact of cancer on their lives.
617-632-4020 Family Connections
Caregivers & SupportersCancer CareCounseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services in person for the tri-state area, on phone and online for all U.S.
800-813-4673 (800-813-HOPE) cancercare.org
Caregivers & SupportersNational Family Caregivers AssociationEducation, support, respite care and advocacy for caregivers, including support groups. Free memberships to U.S. caregivers.
800-896-3650 info@nfcares.org nfcacares.org
Caregivers & SupportersNational Students of AMF (Ailing Mothers & Fathers) Support NetworkSupports grieving college students and raises awareness about their needs. Establishes campus chapters, provides interactive e-support online, awards scholarships, funds adolescent bereavement studies, conducts conferences on college student bereavement.email David Faigenbaum studentsofamf.org
Caregivers & SupportersKids KonnectedFriendship, education, support and newsletter for kids of cancer patients.
800-899-2866 kidskonnected.org
Caregivers & SupportersRosalynn Carter Institute for Human DevelopmentRCI provides educational programs for caregivers, conducts research, and disseminates information about caregiving.
229-928-1234 rci.gsw.edu or rosalynncarter.org
Caregivers & SupportersWell Spouse FoundationA national membership organization that gives support to husbands, wives and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.
800-838-0879 wellspouse.org
CervicalCervical Health
cervicalhealth.com
CervicalBreast and Cervical Cancer Project (Show me Healthy Women)Missouri Department of Health program provides free mammograms and Pap smears to uninsured and underinsured. KC contact: Marney Robinson, Truman West 816-373-4485, X4005. Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations.
573-876-3273
CervicalThe Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF)Awareness for preventing, detecting and treating gynecological cancers and supports research and training.
800-444-4441
foundationforwomenscancer.org/ wcn.org
CervicalNational Cervical Cancer CoalitionYWCA USA Helps medically under-served women in need of early detection, education, breast and cervical cancer screening, and support services.
202-467-0801, (800) 222-4738
nccc-online.org ywca.org
CervicalIn My Sister's CareA national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
212-802-7686, 202-607-1883
inmysisterscare.org
CervicalEyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org/
ChemotherapyBy My SideInformation on chemotherapy side effects and more from Amgen, maker of Neulasta (white blood cell count stimulator)
chemotherapy.com
Childhood CancerKids KonnectedFriendship, education, understanding, support and newsletter for kids who have a parent with cancer.
800-899-2866
kidskonnected.org
Childhood CancerSt. Jude Children's Research HospitalNo-fee care in Memphis, TN
866-278-5833
stjude.org
Childhood CancerStarlight FoundationWish-granting, entertainment, education and family activities for seriously ill children and their families.
310-479-1212
starlight.org
Childhood CancerNational Children's Cancer SocietyMission is to improve quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
800-532-6459
children-cancer.com
Childhood CancerChildhood Leukemia CenterOnline copy of Childhood Leukemia - A Guide for Families, Friends and Caregivers.

patientcenters.com/leukemia
Childhood CancerNational Childhood Cancer FoundationSupports pediatric cancer treatment and research projects and provides a network for pediatric cancer specialists. The website offers facts about childhood cancer, clinical trials, links to other information sources, news and events, and a way to search for clinical trial protocols and Children's Cancer Group Specialists.
800-458-6223
curesearch.org
Childhood CancerKids Cancer NetworkBimonthly magazine (English/Spanish), resource center, pen-friends, prayer network and "your story" sharing area.

kidscancernetwork.org
Childhood CancerChildren's Hospice InternationalSupport and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological and spiritual expertise and information.
800-2-4-CHILD (800-242-4453)
chionline.org
Childhood CancerCandlelighters Childhood Cancer FoundationOrganization for parents of children who have cancer, coordinated locally by Children's Mercy Hospital. Toll-free number provides regional information about camps for children with cancer, support groups for parents and/or children, and educational information.
800-366-2223 (816-234-3266 Pat Brown KC local area)
candlelighters.org
Childhood CancerTrish Greene Back To School ProgramFosters communication among healthcare professions, parents, young patients and school staff in preparation for the return to school and other activities. Information, including "Touching Lives" resource directory, videos and more.
800-955-4572
leukemia-lymphoma.org
Childhood CancerChildren's Brain Tumor FoundationResource guide (English/Spanish) for parents of children with brain or spinal cord tumors, newsletter, family-to-family support, funds research, and co-sponsors phone and internet conferences for families, survivors and healthcare professionals.
866-228-4673
cbtf.org childrensneuronet.org
Childhood CancerCureSearch National Childhood Cancer Foundation & The Children's Oncology GroupSupports the work of CureSearch Children's Oncology Group at more than 200 member institutions. Represents every pediatric cancer program in North America, treating more than 90% of children with cancer.
800-458-6223
CureSearch.org
Childhood CancerMake-A-Wish FoundationGrants wishes of children with terminal or life-threatening illnesses.
800-722-9474
wish.org
Childhood CancerChildren's Brain Tumor FoundationResource guide for parents of children with brain or spinal cord tumors. Communication through e-mail only.
212-448-9494 childrensneuronet.org
Childhood CancerNational Children's Cancer SocietyDirect financial assistance and emotional support to children with cancer and their families.
800-532-6459 children-cancer.com
Childhood CancerNational Children's Leukemia FoundationComprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care.
800-448-3467 (800-GIVE-HOPE), In NY: 718-251-1222 leukemiafoundation.org
Childhood CancerNational Childhood Cancer FoundationSupports pediatric cancer treatment and research projects and provides a network for pediatric cancer specialists. The website offers facts about childhood cancer, clinical trials, links to other information sources, news and events, and a way to search for clinical trial protocols and Children's Cancer Group Specialists.
800-458-6223 curesearch.org
Childhood CancerChildren's Hospice InternationalSupport and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological and spiritual expertise and information.
800-243-4453 chionline.org
Childhood CancerPediatric Brain Tumor FoundationSupports the cause and cure of childhood brain tumors through funding medical research, provides patient and family support, resource and educational materials, advocates for increased awareness, hosts series of worldwide internet conferences to provide information and support to families.
800-253-6530 pbtfus.org
Childhood CancerUlman Cancer Fund for Young Adults: National College Scholarship ProgramOffers three scholarships for young adult cancer survivors diagnosed after the age of 15 and are currently under the age of 35. In addition, the organization offers scholarships for young adults who have a parent living with a cancer diagnosis, or who have lost a parent to cancer.
888-393-FUND (3863) ulmanfund.org
Childhood CancerStarlight FoundationWish-granting, in-hospital entertainment.
800-315-2580 starlight.org
Childhood CancerAmerican Childhood Cancer Organization - Candlelighters Childhood Cancer FoundationOrganization for parents of children who have cancer, coordinated in Kansas City by Children's Mercy Hospital. Toll-free number provides regional information about camps for children with cancer, support groups for parents and/or children, and educational information.
800-366-2223 (Local contact Pat Brown, 816-234-3266) candlelighters.org or acco.org
Childhood CancerViaCordumbilical cord blood stem cell collections for families, and has been involved in cutting edge research to find new stem cell therapies for diseases like cancer. http://www.viacord.com/
ChordomaChordoma FoundationWorks to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible. chordomafoundation.org/
Clinical TrialsCancer411.orgComprehensive clinical trials database that lists all ongoing cancer trials in a searchable database. 877-CANCR411 (877-226-2741) www.cancer411.org
Clinical TrialsCoalition of Cancer Cooperative GroupsSearch engine, interactive training guide and patient discussion forum.
877-520-4457 cancertrialshelp.org
Clinical TrialsNational Cancer Instituteclinicaltrials.gov
Clinical TrialsCenter WatchThe global source for clinical trials information: offering news, analysis, study grants, career opportunities, and trial listings to professionals and patients.
centerwatch.com
Co-pays & Other Medical CostsGenentech: Patient AccessGenentech Access Solutions offers coverage support, patient assistance, other useful information to help you along the way. gene.com/patients/patient-access
Co-pays & Other Medical CostsBristol-Myers SquibbIf you need help paying for your prescription medicine, you may be eligible for assistance. bms.com/products
Co-pays & Other Medical CostsPatient Access Network FoundationCo-payment assistance to help underinsured patients access the medical attention and treatment they need to sustain a reasonable quality of life. Assistance can range from $1,500 to $8,000 a year, depending on the diagnosis and availability. Eligible cancers include breast, colorectal, multiple myeloma, non-Hodgkin's lymphoma, non-small cell lung cancer, and pancreatic cancer. Website shows current status of funding for each cancer type.
866-316-7263 https://www.panfoundation.org
Co-pays & Other Medical CostsHill-Burton ActRequires hospitals that receive federal funding to provide free or low-cost care to the surrounding community. Provides doctor referrals.
888-275-4772 hrsa.gov/...
Co-pays & Other Medical CostsThe Lois Merrill FoundationAccepts applications year-round from carcinoid/neuroendocrine tumor patients, and patients with other rare cancers, for medical expense assistance. Apply online or by mail at 1050 Island Ave., #517, San Diego, CA 92101
theloismerrillfoundation.org
Co-pays & Other Medical CostsHealthy Women Program, CDCUninsured women with low to moderate incomes with breast cancer, cervix cancer or a primary breast cancer metastases may be eligible for free treatments, including radiation therapy.
800-232-4636 (CDC-INFO) apps.nccd.cdc.gov/...
Co-pays & Other Medical CostsPatient Advocate FoundationPAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo.
English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org Underinsured Financial assist by STATE
Co-pays & Other Medical CostsFertile HopeFertile Hope is a LIVESTRONG > initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. If you have fertility-related questions or would like more information related to the Sharing Hope assistance program call toll-free
866-965-7205 Online intake form - complete this form for the LIVESTRONG SurvivorCare program. fertilehope.org
Co-pays & Other Medical CostsNational Association of Free ClinicsHas list by state of free clinics in U.S.
703-647-7427 freeclinics.us
Co-pays & Other Medical CostsBone Marrow FoundationUp to $1,000 to cover donor search, housing, transportation & medication, primarily on the East Coast
800-365-1336 bonemarrow.org
Co-pays & Other Medical CostsThe Max FoundationHelps match patients with blood-related cancers with sources of financial assistance.
888-462-9368 themaxfoundation.org
Co-pays & Other Medical CostsAmerican Childhood Cancer Organization / CandlelightersList of groups to which eligible families may apply for financial help.
800-366-2223 candlelighters.org
Co-pays & Other Medical CostsLeukemia & Lymphoma SocietyUp to $500 per year supplementary help to patients with blood-related cancers.
800-955-4572 leukemia-lymphoma.org
Co-pays & Other Medical CostsKristy Lasch Miracle FoundationUp to $500 per year supplementary help to patients with blood-related cancers.
412-872-4125 kristylasch.org
Co-pays & Other Medical CostsNational Health Service CorpsFederally-funded health centers offer free or reduced-cost care in areas with few private resources, even for those without health insurance.
877-313-1823 findahealthcenter.hrsa.gov/Search_HCC.aspx
Co-pays & Other Medical CostsNational Organization of Rare Disorders (NORD)Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org
215-625-9609 rarediseases.org
Co-pays & Other Medical CostsNational Leukemia Research AssociationFinancial assistance to patients of all ages for x-ray therapy, chemo and leukemia-related lab fees.
516-222-1944 childrensleukemia.org
Co-pays & Other Medical CostsCancerCare Co-Payment Assistance FoundationHelps patients who can't afford co-payments on treatments for breast, lung, colorectal or pancreatic cancer. English and Spanish spoken.
866-552-6729 cancercarecopay.org
Co-pays & Other Medical CostsHealthWell FoundationHelp with out-of-pocket costs for prescription copays, coinsurance, deductibles and health-care premiums for patients with breast cancer. carcinoid tumors and related symptoms, chemotherapy induced anemia/neutropenia, colorectal cancer, cutaneous T-cell lymphoma, glioblastoma multiforme/anaplastic astrocytoma, head and neck cancer, Hodgkin's Disease, non-Hodgkin's lymphoma, non-small cell lung cancer and Wilm's Tumor.
800-675-8416 healthwellfoundation.org
Co-pays & Other Medical CostsNational Brain Tumor SocietyFinancial assistance referrals
800-934-2873 Patient Services braintumor.org/
Co-pays & Other Medical CostsLymphoma Research Foundation, Inc.Limited financial assistance for uninsured and underinsured lymphoma patients undergoing treatment. Free helpline and information service for referrals to financial assistance programs, legal and insurance help.
800-235-6848, 800-500-9976 lymphoma.org
Co-pays & Other Medical CostsChildren's Leukemia Research AssociationHelps pay for care not covered by insurance.
516-222-1944
ColonColon Cancer AllianceTreatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer.
877-422-2030, 202-628-0123
ccalliance.org
ColonFight Colorectal Cancer Advocacy group's site includes a guide to diagnosis and treatment options and a range of resources.
877-427-2111, 703-548-1225
fightcolorectalcancer.org
ColorectalColon Cancer AllianceTreatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer.
877-422-2030, 202-628-0123
ccalliance.org
ColorectalC3: Colorectal Cancer CoalitionAdvocacy group's site includes a guide to diagnosis and treatment options and a range of resources.
877-427-2111, 703-548-1225
fightcolorectalcancer.org
ColorectalColorectal Care LineLimited finances for transportation reimbursement, temporary lodging, child care and food costs associated with out-of-town treatment. Education, legal counseling, referrals for managed care issues, insurance, financial issues, job discrimination and debt crisis matters.
866-657-8634 colorectalcareline.org
ColorectalColon Cancer AllianceTreatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer.
877-422-2030, 202-628-0123
ccalliance.org
ColorectalColorectal Cancer Association of CanadaProvides information about colon cancer prevention, screening & treatment. Connects survivors to support groups around Canada and online. Advocacy tool kit online. Services in English & French.
877-502-6566
5 Place Ville Marie, Stuite 1230
Montreal, Quebec H3B 2G2
Canada
colorectal-cancer.ca
ColorectalLynch Syndrome InternationalLynch syndrome is an inherited condition that increases your risk of colon cancer and other cancers.
707-689-5089
lynchcancers.com
Complementary & Integrative CareNational Center for Complementary and Alternative Medicine (NCCAM)Overriding mission is to give the American public reliable information about the safety and effectiveness of complementary and alternative medicine (CAM) practices. NCCAM is an advocate for quality science, rigorous and relevant research, and open and objective inquiry into which CAM practices work, which do not, and why. 888-644-6226. www.nccam.nih.gov
Complementary & Integrative CareComplementary/Integrative Medicine, National Cancer Institutecancer.gov
Complementary & Integrative CareIntegrative Medicine Program, M.D. Anderson Cancer CenterReviews, continuing education opportunities, communication techniques, drug interaction advisories and other information, for use in discussing and advising patients wanting to use these therapies.
877-632-6789 (877-MDA-6789) mdanderson.org/cimer
Complementary & Integrative CareCancerbackup - Macmillan Cancer Support cancerbackup.org.uk
Complementary & Integrative CareThe Annie Appleseed ProjectNatural therapies from the cancer patient perspective
561-637-1996 annieappleseedproject.org
DepressionAmerican Psychosocial Oncology SocietyHelpline connects cancer patients and their caregivers to psychiatrists, psychologists, nurses, social workers and counselors skilled in the management of cancer-related distress. Intake by voicemail results within 24-48 hours in referrals for local counseling services or, if none are nearby, counseling via telephone.
866-276-7443 apos-society.org
Detailed online informationNational Cancer Institutecancer.gov
Detailed online informationWebMDwebmd.com/cancer/default.htm
Detailed online informationCancerGuideDedicated to providing answers to common questions about cancer, and especially determining the questions that need to be asked. This site provides interesting information from the patient perspective. cancerguide.org
Detailed online informationNational Cancer InstituteAccess to PDQ (Physician Data Query) Information on types of cancer
800-422-6237 (800-4-CANCER) cancer.gov
Detailed online informationCancerConsultantspart of the Cancer Information Network
cancerconsultants.com
Detailed online informationAmerican Society of Clinical Oncologycancer.net
Detailed online informationUniversity of Michigan Comprehensive Cancer Centercancer.med.umich.edu
Diet & NutritionAmerican Institute of Cancer ResearchNational group specializes in diet, nutrition and cancer.
800-843-8114 aicr.org
Diet & NutritionThe Oley FoundationEducational and emotional support, outreach activities, clinical outcomes information for people whose daily survival depends on home intravenous or tube-fed nutrition.
800-776-6539 oley.org
Diet & NutritionAmerican Dietetics AssociationSearch by state for registered dietitians who specialize in oncology nutrition.
800-877-1600 eatright.org
Doctors' Background InformationAmerican Cancer SocietyMedical equipment, respiratory services and home infusion. Identifies fee for service companies or call local office for a list of agencies.
800-227-2345 (National), 816-218-7171 (Local) cancer.org
Doctors' Background InformationVitalsNo-fee website with empirical information on a doctor's quality and expertise, consumer ratings and reviews, and recommendations from other doctors.
201-842-0760 vitals.com
EsophagealEsophageal Cancer Awareness AssociationProvides education, resources and information for people with esophageal cancer, including website newsletter. 800-601-0613
ecaware.org
EsophagusEsophageal Cancer Awareness AssociationProvides education, resources and information for people with esophageal cancer, including website newsletter. 800-601-0613

ecaware.org
Ethical QuestionsCenter for Practical BioethicsAddresses the practical needs of those dealing with healthcare dilemmas in the Kansas City metropolitan area, regionally and nationally. Through education, consultation, and public engagement, the Center has helped patients and their families, healthcare professionals, policymakers, and corporate leaders grapple with ethically complex issues in health and healthcare.
800-344-3829, 816-221-1100 (local) practicalbioethics.org/
EyeEye Cancer NetworkThis site is dedicated to providing information about the diagnosis and treatment of ocular tumors and orbital diseases for patients, their families, and health care professionals. (212) 832-8170. eyecancer.com
FertilityOncolink - Fertility and CancerInformation for both men and women on fertility and cancer treatments.
oncolink.org/
FertilityFertile HopeIs a LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Reproductive Information, support and hope for survivors whose treatments present the risk of infertility.
866-965-7205 fertilehope.org
FertilityOncofertility ConsortiumThe Oncofertility Consortium® is a national, interdisciplinary initiative designed to explore the reproductive future of cancer survivor oncofertility.northwestern.edu 312-503-3378.
Financial Planning & Debt ManagementNational Foundation for Credit CounselingProvides consumer credit counseling and education on budgeting and debt reduction.
800-388-2227 nfcc.org
Financial Planning & Debt ManagementPatient Advocate FoundationPAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo.
English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org patientadvocate.org Financial assistance resources listed by STATE patientadvocate.org
Financial Planning & Debt ManagementConsumer Credit.com - Family Credit Management800-994-3328
Gay & LesbianMautner Project, the National Lesbian Health OrganizationDirect client services, client navigation programs, online support groups, retreats, workshops, research and advocacy for health issues relating to lesbians with cancer and their families.
866-628-8637 (866-MAUTNER) mautnerproject.org
General AdviceCancer Financial Assistance CoalitionA coalition of organizations helping cancer patients manage their financial challenges. Has search engine for assistance based on type of cancer or type of assistance needed.
cancerfac.org
General AdviceAmerican Society of Clinical OncologyManaging Cost of Care available online, including tools for talking with doctors about managing the cost of care, summary of costs associated with treatment, list of financial resources.
cancer.net
General AdvicePatient Advocate FoundationPAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo.
English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org Underinsured Directory -search tool for patients with inadequate insurance who need financial assistance www.patientadvocate.org Financial assistance resources listed by STATE patientadvocate.org
General AdviceGiveForward.orgChicago-based organization provides an Internet platform for people in need to solicit donations.
312-957-6113 giveforward.org
General AdviceCancer Care ConnectionSocial Workers (MSW) level offer personal coaching, Internet navigation assistance, useful information and resource connections.
866-266-2008 cancercareconnection.org
Gynecologic CancersEyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org/
HeadSupport for People with Oral and Head & Neck CancerSupport and information addressing the emotional and psychological needs of oral and head and neck cancer patients and their families.
800-377-0928, 516-759-5333
spohnc.org
HeadLaryngectomy Association - NuVoice (ACS)Laryngectomees who are trained volunteers and who speak well visit a new laryngectomee in the hospital before and after surgery upon medical referral.
800-227-2345, KC area: Dee Etta, 913-432-3277
nu-voice.org
HeadInternational Association of LaryngectomeesPre- and post-operation visits to laryngeal cancer patients, continuing support and education.
866-425-3678
larynxlink.com
HeadHead & Neck Cancer Alliance866.792.HNCA (4622)
headandneck.org
HeadAcinic Cell Information CenterA rare salivary gland cancer, comprising approx. 6%-10% of all salivary gland cancers. All salivary gland cancers comprise between 0.3% and 0.9% of all cancers in the United States. The most likely of salivary gland carcinomas to occur bilaterally. Occasionally an even rarer acinic/acinar cell carcinoma of the pancreas, or of the lung (most lung versions are actually metastases). There is new (limited) data to indicate that a certain kind of breast cancer (secretory or juvenile carcinoma) is identical to acinic cell carcinoma.
Edgar Stroke edgar@aciniccell.org
aciniccell.org
Hodgkin's DiseaseLymphoma Research Foundation Inc.Educational information and "buddy system" for Hodgkin's and non-Hodgkin's lymphoma patients. Quarterly newsletter.
310-204-7040
lymphoma.org
Hodgkin's DiseaseLeukemia & Lymphoma SocietyAddresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
800-955-4572, Local: 913-262-1515
leukemia-lymphoma.org
HospiceKansas City Hospice816-363-2600 kansascityhospice.org
HospiceNational Hospice & Palliative Care Organization (Caring Connections)Provides phone numbers of local hospices throughout the U.S. Information on choosing home care and hospice.
800-658-8898 caringinfo.org
HospiceChoice in DyingAdvocate for individual rights on end-of-life decisions.
800-247-7421 compassionandchoices.org
HospiceGrowth HouseGateway to resources for life-threatening illness and end-of-life issues.
415-863-3045 growthhouse.org
HospiceNational Association for Home Care202-547-7424 nahc.org
HotlineI Can CopeACS-sponsored hospital-based program for patient and family. Learn about disease process, treatment, diagnosis and rehabilitation, exchange ideas and concerns. Emphasis on positive attitudes.
800-ACS-2345 (800-227-2345), Local 816-842-7111 - High Points Division
HotlineHope & Cope (Canada)Survivor matching, support, patient education, wigs (etc.), quarterly magazine (bilingual, English/French) and more - Jewish General Hospital, Segal Cancer Centre
514-340-8222, Ext. 8255 HopeCope english OR HopeCope FRENCH
HotlinePlanet CancerAn online community for young cancer patients (teens to 30s) and their supporters, similar to Facebook and MySpace. Protected website, lots of response to new pages.
planetcancer.org
HotlineDave Dravecky's Outreach of HopeChristian-based prayer support, resource referral and literature.
303-962-7595 endurance.org
HotlineCancer Hope NetworkOne-on-one support by trained volunteers who have survived cancer.
877-467-3638 cancerhopenetwork.org
HotlineImerman AngelsPeer-to-peer counseling, emphasis on young patients
(312) 274-5529 ImermanAngels.org
HotlineFourth Angel NetworkAffiliated with Th
216-445-8734 4thangel.org
HotlineFriends for Life Mentoring NetworkBased in Kentucky
866-374-3634 friend4life.org
HotlineBloch Cancer HotlineThe Cancer Hot Line consists of a group of individuals who have had cancer who are available to talk with newly diagnosed cancer patients, promptly upon diagnosis. We do not make a prognosis or give medical advice. We talk strictly from personal experience, emphasizing prompt treatment, proper treatment, thorough treatment and a positive mental attitude.
800-433-0464 blochcancer.org
HotlineAMC Cancer FundMedical information, resource referrals, emotional support through short-term counseling.
800-525-3777 amc.org
HotlineM.D. AndersonPatient matching, info about the M.D. Anderson Cancer Center.
800-345-6324 (patient referral: 800-392-1611)
Housing & LodgingHope Lodge (an American Cancer Society program)Temporary accommodations in some areas for cancer patients during treatment away from home.
800-227-2345 (National), 816-842-6427 (Local) HopeLodge
Housing & LodgingNational Association of Hospital Hospitality HousesInformation on lodging and support available for families receiving medical care away from home.
800-542-9730 nahh.org
Housing & LodgingRonald McDonald HouseRefuge from the hospital for families of children with cancer.
630-623-7048 rmhc.org
Housing & LodgingJoe's HouseState-by-state lists of accommodations for patients, families and caregivers, also by proximity to hospital. Lodging rates listed; some have online booking links.
877-563-7468 (877- JOESHOU) joeshouse.org
In Home AssistanceStephen MinistriesA Christian, non-denominational, spiritual caregiving program offering confidential weekly one-on-one sessions with trained volunteers in the home, hospital or neutral location.
314-428-2600 stephenministries.org
In Home AssistanceFaith in ActionA membership organization of local programs that use volunteers from many faiths to shop, cook, drive or just check in on the millions of Americans with long-term health needs. Not available in all areas.
877-575-4932 fianationalnetwork.org
In Home AssistanceCleaning for a ReasonProvides free housecleaning once a month for 4 months to women undergoing chemotherapy. Requires a doctor’s confirmation of treatment. Currently works with 547 maid services nationwide who provide the cleaning. The application process opens at 12 noon Central Time, Monday through Thursday, and they accept a maximum of 50 applications each day. However, the demand is such that they accept approximately 8 applications a minute once it’s activated. Therefore, the application process is open for approximately 6 minutes.
877-337-3348 cleaningforareason.org
In Home AssistanceMy Pink PlannerFree online service that helps friends coordinate meals and other support for breast cancer patients.
Cadie Connors, 816-729-6001 mypinkplanner.com
Insurance & LegalCo-Pay Relief ProgramCo-payment assistance for patients being treated for breast, colon, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemotherapy. Qualifying patients have health insurance or Medicare Part D benefits. Applicants must meet medical and financial criteria. Most payments go directly to medical providers or pharmaceutical suppliers
866-512-3861 copays.org/ or patientadvocate.org
Insurance & LegalState Insurance CommissionInformation about coverage for the uninsurable with pre-existing conditions, and about patients' rights.
insuranceclaimsconsult.com
Insurance & LegalState Cancer Legislative DatabaseState-by-state information from the National Cancer Institute on legislation relating to breast, cervical, colorectal, ovarian, prostate, skin, testicular and uterine cancer, access to state-of-the-art treatment, cancer registries, genetics, and tobacco.
scld-nci.net
Insurance & LegalCancerCare Inc.Counseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services provided in person, on phone and online.
800-813-4673 (800-813-HOPE) cancercare.org
Insurance & LegalAmerican Cancer Society800-ACS-2345, ask to speak to the insurance specialist. cancer.org
Insurance & LegalAlliance of Claims Assistance ProfessionalsHelps ensure that clients receive all health insurance benefits to which they are entitled, acts a liaison between patients, insurance companies and health-care providers.
888-394-5163 claims.org
Insurance & LegalCancervivecancervive@aol.com cancervive.org
Insurance & LegalCancer Legal Resource CenterFree and confidential information and resources on cancer-related legal issues. A joint program of Loyola Law School, Los Angeles, and the Disability Rights Legal Center (formerly Western Law Center for Disability Rights).
866-843-2572, 213-736-1455 lls.edu
Insurance & LegalPatient Advocate FoundationInformation on managed-care terminology and policy issues that may affect coverage; legal intervention services; and counseling to resolve job and insurance problems.
800-532-5274 patientadvocate.org
Insurance & LegalNational Coalition for Cancer Survivorship888-937-6227 (888-YES-NCCS) canceradvocacy.org
Insurance & LegalDepartment of Health & Human Services Inspector General HotlineAnswers complaints regarding fraud, overcharging or other abuses related to Medicare or Medicaid. Provides help with entitlements and benefits, and information on insurance and community resources.
800-447-8477 oig.hhs.gov
International Medical CareMedical Tourism Association561-791-2000 medicaltourismassociation.com
Kansas City Area Support & Advocacy GroupsVicki Welsh FundOvarian cancer information
thevickiwelshfund.org/
Kansas City Area Support & Advocacy GroupsTurning Point: The Center for Hope & Healing913-383-8700 turningpointkc.org
Kansas City Area Support & Advocacy GroupsCancer Action913-321-8880 (Wyandotte County KS), 816-350-8881 (Independence MO), 913-642-8885 (Johnson County KS) canceractionkc.org
Kansas City Area Support & Advocacy GroupsThe Andrew J. Somora FoundationHelping families in the greater Kansas City area cope with the financial burdens of a colon cancer diagnosis and spreading awareness of the symptoms of colon cancer and the importance of early detection.
AndrewJSomoraFoundation.com
KidneyKidney Cancer AssociationWritten materials, telephone referrals to oncologists and urological surgeons. Website has listings of clinical trials. Sponsors a national patient convention yearly and patient information meetings in 35 major cities.
800-850-9132
nkca.org curekidneycancer.org kidneycancer.org
KidneyAmerican Urological Association FoundationDedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs.
800-242-2383
urologyhealth.org
KidneySociety of Urologic OncologyWebsite has an online member referral service.
847-264-5901
societyofurologiconcology.org
Legal Advice & Insurance AdvocacyVeterans Benefits877-222-8387 (877-222-VETS) va.gov/vbs/health
Legal Advice & Insurance AdvocacyState Children's Health Insurance ProgramFederal-state partnership offers low-cost or free coverage to uninsured children of low-wage, working parents.
877-543-7669 insurekidsnow.gov
Legal Advice & Insurance AdvocacySocial Security Administrationssa.gov
Legal Advice & Insurance AdvocacyMedicare & MedicaidCenters for Medicare & Medicaid Services
800-MEDICARE (800-633-4227) medicare.gov
Legal Advice & Insurance AdvocacyMedicare Rights CenterNational hotline, free counseling on Medicare questions or problems, local programs in New York City/Westchester County
800-333-4114 medicarerights.org
Legal Advice & Insurance AdvocacyMedicaidcms.hhs.gov/medicaidgeninfo
Legal Advice & Insurance AdvocacyPatient Services IncorporatedHelps locate suitable health insurance coverage and access ways to meet expensive co-payments
800-366-7741 patientservicesinc.org
LeukemiaNational Children's Leukemia FoundationComprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care.
800-448-3467, In NY: 718-251-1223
leukemiafoundation.org
LeukemiaLeukemia & Lymphoma SocietyAddresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
800-955-4572, Local: 913-262-1515
leukemia-lymphoma.org
LiverAmerican Liver FoundationGeneral information, information on local chapters, but most of the support groups are for hepatitis and liver transplant patients.
800-465-4837, (212) 668-1000
liverfoundation.org
LungLung Cancer Online FoundationFunds research and provides information to patients and families via website.

lungcanceronline.org
LungLung Cancer Circle of HopeNew Jersey-based group developing advocacy and regional educational programs.
732-363-4426
lungcancercircleofhope.org
LungLung Cancer AllianceAdvocacy for patients, survivors, families and caregivers. Patient-survivor "buddy" matches, quarterly newsletter, information on support groups, and online support group.
800-298-2436
lungcanceralliance.org
LungLungCancer.orgA website operated by CancerCare specifically for lung cancer, with links to information and CancerCare support.
877-646-5864
lungcancer.org
LungAmerican Lung AssociationInformational packets, answers to medical questions.
800-586-4872, Local 816-842-5242
lungusa.org
LungLung HelpLineRegistered nurses and respiratory therapists provide answers about lung disease related issues including respiratory therapy, respiratory home health care, medication counseling, physician referral (in upper Midwest) and more.
800-548-8252
lunghelpline.org
LungLung Cancer Caring Ambassadors ProgramProvides information and encouragement to people with lung cancer and their loved ones.

lungcancercap.org
LungHello Have you Heard?This site is all about the early detection blood test in addition to other important lung cancer information. 888-583-9030. hellohaveyouheard.com
LymphedemaTherapy Plus (Shawnee Mission Med Ctr)913-676-2444 or 913-676-6832
LymphedemaNational Lymphedema NetworkCounseling and referrals to treatment centers
800-541-3259 - Hotline lymphnet.org
LymphomaLymphoma Research Foundation Inc.Information tailored to patient's diagnosis, "buddy system" for Hodgkin's and non-Hodgkin's lymphoma patients. Quarterly newsletter.

lymphoma.org
LymphomaLeukemia & Lymphoma SocietyAddresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
800-955-4572, Local: 913-262-1515
leukemia-lymphoma.org
LymphomaMantle Cell Lymphoma ConsortiumCore information for patients, and a searchable database of relevant clinical trials.
800-500-9976
mantlecelllymphoma.org
LymphomaLymphoma Information NetworkThis site contains information on lymphoma, Hodgkin's disease, and non-Hodgkin's lymphoma (NHL). The site strives to gather lymphoma information and resources in one place. 310-689-7531. lymphomainfo.net
MelanomaNorthern California Melanoma Center, St. Mary's Medical CenterReview of new patients' cases by a Consulting Panel
415-750-5660
melanomacenter.com
MelanomaMelanoma Patients Information PageHas bulletin board, chat room, e-mail links and anecdotal stories about melanoma patients.

mpip.org
MelanomaMelanoma Research FoundationPatient information and an online chat room.
800-673-1290
melanoma.org
MelanomaMelanoma Care CoalitionFor medical professionals, a list by region of hospitals with melanoma centers. No evaluation.
845-398-5100
melanomacare.org
Metastatic CancerMetaCancer Foundation (with Wellness Community)Resources and support for metastatic cancer survivors and their caregivers. Those with very different types of metastatic cancer acknowledge the common psychological and emotional realities they face.
info@metacancer.org 760-231-9636 metacancer.org
Metastatic CancerJack & Jill Late Stage Cancer FoundationProvides "dream Factory memory opportunities for children who have a Mom or Dad with late-stage, limited life expectancy cancer.
404-279-5211 jajf.org
Metastatic CancerMetastatic Breast Cancer NetworkRaises awareness of metastatic breast cancer by putting a public face on the metastatic experience. We give those living with stage IV disease a greater voice and visibility in the breast cancer community, the medical community, the research community, and with the public-at-large. mbcn.org/
Multilingual ServicesACS access to ATT language lineOption 9 for Spanish - Ask to speak to someone in the language of choice.
800-227-2345
Multilingual ServicesASCO Patient Guides in SpanishPrimarily for those of Asian and Pacific Islander descent. Offers linking connections with survivors and resources to services and multi-lingual cancer materials
415-954-9988 plwc.org
Multilingual ServicesCenters for Disease Control, Spanish-language cancer informationcdc.gov/spanish/cancer
Multilingual ServicesCalifornia Chinese Unit, American Cancer Society888-566-6222, 510-797-0600 acs-nccu.org
Multiple MyelomaLeukemia & Lymphoma SocietyAddresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
800-955-4572, Local: 913-262-1515
leukemia-lymphoma.org
Multiple MyelomaMultiple Myeloma Research FoundationSupports research grants and professional symposiums, publishes quarterly newsletter, conducts seminars, and provides referrals and info packets.
203-972-1250
multiplemyeloma.org
Multiple MyelomaInternational Myeloma FoundationHotline, information packets, quarterly newsletter, seminars, workshops.
800-452-2873, 818-487-7455
myeloma.org
Myelodysplastic SyndromeMyelodysplastic Syndromes Center FoundationIts international information network provides patients with referrals to treatment centers knowledgeable about MDS, contact names for available clinical trials, sharing of new research and treatment options between physicians, educational support to doctors and patients, and patient advocacy groups.
800-MDS-0839
mds-foundation.org
NeckSupport for People with Oral and Head & Neck CancerSupport and information addressing the emotional and psychological needs of oral and head and neck cancer patients and their families.
800-377-0928, 516-759-5333
spohnc.org
NeckInternational Association of LaryngectomeesPre- and post-operation visits to laryngeal cancer patients, continuing support and education.
866-425-3678
larynxlink.com
NeckLaryngectomy Association - NuVoice (ACS)Laryngectomees who are trained volunteers and who speak well visit a new laryngectomee in the hospital before and after surgery upon medical referral.
800-227-2345, KC area: Dee Etta, 913-432-3277
nu-voice.org
NeckHead & Neck Cancer Alliance 866.792.HNCA (4622)
headandneck.org
NeckAcinic Cell Information CenterA rare salivary gland cancer, comprising approx. 6%-10% of all salivary gland cancers. All salivary gland cancers comprise between 0.3% and 0.9% of all cancers in the United States. The most likely of salivary gland carcinomas to occur bilaterally. Occasionally an even rarer acinic/acinar cell carcinoma of the pancreas, or of the lung (most lung versions are actually metastases). There is new (limited) data to indicate that a certain kind of breast cancer (secretory or juvenile carcinoma) is identical to acinic cell carcinoma.
Edgar Stroke edgar@aciniccell.org
aciniccell.org
NeuroendocrineCarcinoid.orgCarcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor

carcinoid.org
NeuroendocrineHeartLandCarcinoids.orgCarcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor

heartlandcarcinoids.org
NeuroendocrineNet Islet Cell Yahoo! Groupan information and education group for patients, family
members, and medical professionals focused on Islet Cell Tumors.
This list is monitored by medical professionals, and is a good place
to ask questions about the disease and to share clinical experiences. This is NOT an emotional-support group.
NET_ISLETCELL/
NeuroendocrineACOR.orgCarcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor

ACOR.org
NeuroendocrineNorthern California Carcinoid FightersCarcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor

NCCF.org
NeuroendocrineCnetsCanada.orgCarcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor

cnetscanada.org
NeuropathyThe Neuropathy AssociationGeneral info on neuropathy from various causes, plus info on support groups.
212-692-0662 neuropathy.org
Non-Medical Financial AssistanceCancer Survivors FundProvides college scholarships and financial assistance for prosthetic limbs to young adult cancer survivors. See website for information on eligibility and application.
281-437-7142 cancersurvivorsfund.org
Non-Medical Financial AssistanceCancerCareBreast cancer - AVONCares: Limited financial assistance for home care, childcare and transportation. A program in partnership with the Avon Foundation. Linking A.R.M.S.: Limited financial assistance for hormonal and oral chemotherapy, pain and anti-nausea medication, lymphedema supplies and durable medical equipment. A program in partnership with Susan G. Komen for the Cure. Children ages 18 and under:  Limited financial assistance for home care, child care, transportation, medication and co-pays. All other cancers: Limited financial assistance for home care, childcare, transportation, and pain medication. Touching Hearts program funded by the Mary Kay Ash Charitable Foundation. San Diego area assistance funded by the WebMD Foundation.
800-813-4673 (800-813-HOPE) cancercare.org
Non-Medical Financial AssistanceCaregivers MarketplaceCash-back (up to $1 per item) program for eligible products not typically covered by insurance or Medicare, including Ensure and Depends. Enrollment, list of products online.
800-888-0889 caregiversmarketplace.com
Non-Medical Financial AssistanceUlman Cancer Fund for Young Adults: National College Scholarship ProgramOffers three scholarships for young adult cancer survivors diagnosed after the age of 15 and are currently under the age of 35. In addition, the organization offers scholarships for young adults who have a parent living with a cancer diagnosis, or who have lost a parent to cancer.
888-393-FUND (3863) ulmanfund.org
Non-Medical Financial AssistanceNeighborWorks AmericaInformation on resources for people having difficulty paying a mortgage or know they will have difficulty in the near future.
202-220-2300 nw.org
Non-Medical Financial AssistanceSurviving and Moving Forward: The SAM Fund for Young Adult Survivors of CancerGrants and scholarships for survivors ages 17-35 to help them pursue educational or professional goals.
617-938-3484 thesamfund.org
Non-Medical Financial AssistanceCatholic Charities - Brenda Mehling Cancer FundFinancial assistance for patients ages 18-40 to cover co-pays, rent/mortgage, transportation, car insurance, repairs and groceries. Apply through website.
661-310-7940 bmcf.net
OralOral Cancer FoundationPrevention, education, research advocacy and support activities.
949-646-8000
oralcancerfoundation.org
OralHead & Neck Cancer Alliance866.792.HNCA (4622)
headandneck.org
OralSupport for People with Oral and Head & Neck Cancer (SPOHNC)Support and information for patients' emotional, psychological and humanistic needs.
800-377-0928
spohnc.org
OralWeb WhispersSupport for survivors of larynx and throat cancers.

webwhispers.org
OstomyCrohn's & Colitis Foundation of AmericaNo cancer connection, but chapters nationwide where ostomy patients can get support for that aspect.
800-932-2423 ccfa.org
OstomyConvaTec Connection800-422-8811 convatec.com
OstomyUnited Ostomy AssociationEducation, information, support and advocacy for intestinal or urinary diversion patients.
800-826-0826 uoa.org
OvarianSupport ConnectionBreast & ovarian hotline, teleconference monthly, 8 p.m. Eastern on the 2nd Wednesday.
800-532-4290
supportconnection.org
OvarianOvarian Cancer National AllianceConsumer-led umbrella group uniting cancer survivors, women's health activists and healthcare professionals in a coordinated effort to focus national attention on ovarian cancer.
866-399-6262
ovariancancer.org
OvarianOvarian Cancer Research FundAdvances research by underwriting investigations to find techniques for early detection and to aid in development of new therapies. Raises awareness through educational outreach programs, awareness projects and video & resource materials.
800-873-9569
ocrf.org
OvarianFORCE (Facing Our Risk of Cancer Empowered)Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer. Also has peer-to-peer matching service.
866-824-7475 (RISK)
facingourrisk.org
OvarianGilda Radner Familial Family RegistryInformation about risk factors, warning signs and diagnostic tests, plus a family registry.
800-682-7426 (800-OVARIAN)
ovariancancer.com
OvarianConversations: The International Ovarian Cancer ConnectionFree newsletter, matching service
806-355-2565
ovcanews@aol.com ovarian-news.org
OvarianNational Ovarian Cancer CoalitionBrochures about symptoms and treatments for newly diagnosed. Website has a chat room and "Ask the Doctor" section. Education seminars for healthcare providers and forums for the public. Also collects data for research.
888-682-7426 (888-OVARIAN)
ovarian.org
OvarianIn My Sister's CareA national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
212-802-7686, 202-607-1883
inmysisterscare.org
OvarianThe Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF)Awareness for preventing, detecting and treating gynecological cancers and supports research and training.
800-444-4441
foundationforwomenscancer.org/ wcn.org
OvarianEyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org
PainAlliance of State Pain Initiatives (WI)Based in the University of Wisconsin School of Medicine & Public Health. A network of state-based Pain Initiative organizations working to remove barriers that impede pain relief through education, advocacy and institutional improvement. State initiatives include nurses, physicians, pharmacists, social workers, psychologists, patient advocates, and representatives of clergy, higher education, and government dedicated to improving the care of persons with pain.
608-265-4013 trc.wisc.edu/
PancreaticLustgarten Foundation for Pancreatic Cancer ResearchPatient and Caregiver Education (PACE) program helps link patients and caregivers to community-based services, provides a patient information booklet and operates a clinical trial matching service. Based in Bethpage, NY.
866-789-1000
lustgartenfoundation.org
PancreaticMichael Rolfe Pancreatic Cancer FoundationChicago-area support groups
312-609-9910
rolfefoundation.org
PancreaticPancreatic Cancer Action Network (PANCAN)Information and peer-to-peer matching; research, patient support, community outreach and advocacy. PALS program provides patient and liaison services, diagnosis, treatment option and support resources.
877-272-6226
pancan.org
PancreaticPancreaticaIn-depth selection of latest medical information on pancreatic cancer, reviewed by a board of medical advisors. Also, a comprehensive list of clinical trials.
831-658-0600, 800-525-3777 Information & Counseling Line at U of Colorado Cancer Center
pancreatica.org
PancreaticPancreatic Cancer-Awareness MattersResources, DVD and book on pancreatic cancer
Sherry Ainsworth 816-960-9100 (the Lockton Companies), ask for Sherry Ainsworth
cancerbattleplan.com
PancreaticHirshberg Foundation for Pancreatic Cancer ResearchA national, non-profit organization dedicated to advancing pancreatic cancer research, and serving as an information/advocacy resource for pancreatic cancer patients and their families. (310) 473-5121. pancreatic.org
PenileSociety of Urologic OncologyWebsite has an online member referral service
847-264-5901
societyofurologiconcology.org
PenisSociety of Urologic OncologyWebsite has an online member referral service
847-264-5901
societyofurologiconcology.org
PeritonealPMP PalsThe PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter
831-424-4545 pmppals@yahoo.com
pmppals.org
PregnancyPregnant with Cancer NetworkInformation and matching service (phone or email)
800-743-4471 hopefortwo.org
Prescription AssistanceSafety Net FoundationNonprofit patient
assistance program that helps qualifying uninsured
patients access Amgen medicines at no cost. safetynetfoundation.com
Prescription AssistanceGenentech: Patient AccessGenentech Access Solutions offers coverage support, patient assistance, other useful information to help you along the way. gene.com
Prescription AssistanceCommunity Assistance Program - CAP Drug CardNational - Free card provides discount savings on brand-name & generic drugs at participating pharmacies.
CapRxProgram.org
561-319-6755
Prescription AssistanceWashington RxWashington Card800-227-5255
Prescription AssistanceMaine Rx Plus866- 796-2463
Prescription AssistanceMichigan MIRx Rx Savings866-755-6479
Prescription AssistanceMedbank MarylandProvides prescription drug discount cards that give patients with little or no prescription drug coverage 15% to 40% discounts on name-brand and generic prescription drugs.
877-435-7755
Prescription AssistanceMaryland Rx Discount800-226-2142
Prescription AssistanceWest Virginia Golden Mountaineer Card877-987-3646
Prescription AssistanceTogether Rx AccessQualifying patients receive discounts of 25% to 40% on brand name and generic prescriptions.
800-444-4106 togetherrxaccess.com
Prescription AssistanceArizona CoppeRxCard888-227-8315
Prescription AssistancePartnership for Prescription Assistance800-477-2669 (800-4PPA-NOW) pparx.org
Prescription AssistanceNew Hampshire Rx Drug Discount Program for Seniors800-351-1888
Prescription AssistanceOhio Golden Buckeye800-301-6446
Prescription AssistanceCalifornia Discount Rx Program800-434-0222
Prescription AssistancePharmaceutical companiesSome offer patient assistance programs for costly medicines: Get information from physician or medical social worker
Prescription AssistanceIowa Priority Rx Savings866-282-5817
Prescription AssistanceFlorida Rx Discount Program888-419-3456
Prescription AssistanceNational Organization for Rare Disorders (NORD)Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org
215-625-9609 rarediseases.org
Prescription AssistanceNational Organization of Rare Disorders (NORD) - Needy MedsSome prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org
212-625-9609 rarediseases.org
Prescription AssistanceBreast Cancer Action Breast Cancer Action offers links to info on assistance for meds used to treat breast cancer, including varying eligibilty requirements, enrollment processes, and duration of assistance.
patient assistance programs bcaction.org
Prescription AssistanceBayer Indigent Patient ProgramProducts covered by program: Most Bayer pharmaceutical prescription medications used as recommended in prescribing information Physician Requests Should Be Directed To Bayer Indigent Program
PO Box 29209 Phoenix, Arizona 85038-9209 (800) 998-9180
Prescription AssistanceBoehringer Ingelheim Cares Foundation, Inc.Helps those in need obtain medications free of charge. Physician requests should be directed to:
Boehringer Ingelheim Cares Foundation, Inc.
c/o Express Scripts Specialty Distribution Services, Inc.
PO Box 66555
St. Louis, MO 63166-6555 us.boehringer-ingelheim.com
Prescription AssistanceMerck Patient Assistance ProgramHelps cover some costs of Merck Medications. Eligibility is based on the patient's insurance status and income level/assets. Patients should have exhausted all third-party insurance, Medicaid, Medicare, and all other available programs. merck.com
Prescription AssistanceGlaxo Wellcome Patient Assistance ProgramProducts covered by program: All marketed Glaxo Wellcome prescription products Physician requests should be directed to Glaxo Wellcome Inc. Patient Assistance Program PO Box 52185 Phoenix, Arizona 85072-2185 1-866.728.4368, (800) 750-9832 (fax) Additional Program Information Can be found at Helix.com www.Helix.com Eligibility: Glaxo Wellcome is dedicated to assuring that no one is denied access to our marketed prescription products as a result of their inability to pay. gsk-access.com
Prescription AssistanceJanssen Patient Assistance ProgramProducts covered by program: Janssen's medical prescription products [Duragesic ® (fentanyl transdermal), Ergamisol® (levamisole), Imodium ® (loperamide), Nizoral ® Cream( ketaconazole cream), Nizoral® Shampoo ( ketaconazole shampoo), Nizoral ® Tablet ( ketaconazole tablet), Propulsid ® (cisapride), Sporanox ® ( itraconazole), Vermox ® (mebendazole) Physician requests should be directed to Janssen Patient Assistance Program 1800 Robert Fulton Drive Reston, Virginia 22091-2346 (800) 544-2987 janssenpharmaceuticalsinc.com
Prescription AssistanceLilly Cares ProgramProducts covered by program: Most Lilly prescription products and insulins (except controlled substances). Gemzar ® is covered under a separate program. Physician requests should be directed to Lilly Cares Program Administrator, Eli Lilly and Company PO Box 25768 Alexandria, Virginia 22313, (800) 545-6962 lillytruassist.com
Prescription AssistanceNovartis Patient Assistance ProgramProducts covered by program: Certain single source and/or life-sustaining products. Controlled substances are not included. Physician requests should be directed to Novartis Pharmaceuticals Patient Assistance Program PO Box 52052 Phoenix, Arizona 85072-9170 (800) 257-3273 patientassistancenow.com
Prescription AssistanceProcrit Line Ortho BiotechProducts covered by program: Procrit® (Epoetin alfa) for non-dialysis use, LEUSTATIN ® (cladribine) Injection Physician requests should be directed to Ortho Biotech Procrit Line (800) 553-3851 pparx.org
Prescription AssistancePfizer Prescription AssistanceProducts covered by program: Most Pfizer outpatient products with chronic indications are covered by this program. Diflucan ® and Zithromax ® are covered by a separate program. Physician requests should be directed to Pfizer Prescription Assistance P.O. Box 25457 Alexandria, Virginia 22313-5457 (800) 646-2455 pfizer.com
Prescription AssistanceProcter & Gamble Pharmaceuticals Patient Assistance ProgramProducts covered by Proctor & Gamble
Contact Information
Alison B. King, Ph.D., Manager, Public Policy
c/o Express Scripts
P.O. Box 66553
St. Louis, MO pparx.org63166-6553
1-(800) 830-9049 (phone)
Prescription AssistanceRoche Medical Needs ProgramProducts covered by program: Roche product line with some exceptions Physician requests should be directed to Roche Medical Needs Program Roche Laboratories, Inc. 340 Kingsland Street Nutley, New Jersey 07110 (800) 285-2484
Roche Medical Needs Program for Roferon ® -A (Interferon alpha-2a, recombinant), Vesanoid ® (tretinoin),and Fluorouracil Injection
Physician requests should be directed to Oncoline?/Hepline? Reimbursement Hotline (800) 443-6676 (press 2 or 3)
Prescription AssistanceSanofi Needy Patient ProgramProducts covered by program: Aralen ®, Breonesin ®, Danocrine ®, Drisdol ®, Hytakerol ®, Mytelase ®, NegGram ®, pHisoHex ®, Plaquenil ®, Primaquine ®, Skelid ®, Photofrin ®, Primacor® Physician requests should be directed to Sanofi Pharmaceuticals Needy Patient Program c/o Product Information Department 90 Park Avenue, New York, New York 10016, (800) 446-6267
Prescription AssistanceSchering Laboratories Key Pharmaceuticals Commitment to Care ProgramProducts covered by program: Most Schering/Key prescription drugs. Physician requests should be directed to: For Intron A/Eulexin: (800) 521-7157 For Other Products: Schering Laboratories/ Key Pharmaceuticals Patient Assistance Program, PO Box 52122, Phoenix, Arizona 85072, (800) 656-9485
Prescription AssistanceSearle Patients in Need ® FoundationProducts covered by program: Aldactazide ®, Aldactone ®, Calan® SR, Kerlone ®, Calan ®, Covera-HS®, Norpace ®, Norpace ® CR, Cytotec ®, Physician requests should be directed to Administrator, Searle Patients in Need ® Foundation, 5200 Old Orchard Road, Skokie, Illinois 60077, (800) 542-2526
Prescription AssistanceSmithKline Beecham Oncology Access to Care ProgramProducts covered by program: Kytril (granisetron HCl) and Hycamtin (topotecan HCl) Physician requests should be directed to The Oncology Access to Care Hotline (800) 699-3806
Prescription Assistance3M Pharmaceuticals Indigent Patient Pharmaceutical ProgramProducts covered by program: Most drug products sold by 3M Physician requests should be directed to Medical Services Department, 275-2E-13, 3M Center, P.O. Box 33275, St. Paul, Minnesota 55133-3275, (800) 328-0255
Prescription AssistanceWyeth-Ayerst Laboratories Indigent Patient ProgramProducts covered by program: Various products (not including scheduleII, III, or IV products) Physician requests should be directed to John E. James, Professional Services IPP, 555 E. Lancaster Avenue, St. Davids, Pennsylvania 19087
Prescription AssistanceZeneca Pharmaceuticals Foundation Patient Assistance ProgramProducts covered by program: Accolate®, Arimidex®, Casodex®, Kadian®, Nolvadex®, Seroquel®, Sorbitrate®, Sular®, Tenoretic®, Tenormin®, Zestril®, Zoladex®, Zomig®. Physician requests should be directed to Patient Assistance Program, Zeneca Pharmaceuticals Foundation P.O. Box 15197, Wilmington, Delaware 19850-5197. (800) 424-3727
ProstateSociety of Urologic OncologyWebsite has an online member referral service
847-264-5901
societyofurologiconcology.org
ProstateAmerican Urological Association FoundationDedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs, including the Prostate Cancer Network.
800-242-2383
urologyhealth.org
ProstateThe Prostate NetIts goal is to provide credible and actionable information, using a synergistic blend of cancer survivors, renowned cancer clinicians and researchers and corporate supporters that will enable patients, their families and health professionals to partner in making the choices to assure the best chance for cure and retention of the desired quality-of-life. Website content is also available in Spanish.
888-477-6763, 201-342-3202
prostatenet.org
ProstateUs Too InternationalEducation and emotional support through a network of groups and monthly newsletter.
800-808-7866
ustoo.org
ProstateProstate Cancer FoundationCalifornia-based foundation provides information online and in free publications, including "Nutrition and Prostate Cancer."
800-757-2873
prostatecancerfoundation.org
ProstateProstate Cancer Research InstituteThe Institute's Help Line, staffed by prostate cancer survivors and supporters, helps the patient understand his diagnosis and his treatment options with information from a variety of sources, including the Institute's medical advisory board.
800-641-7274
prostate-cancer.org pcri.org
ProstateMan to ManAmerican Cancer Society program - Publishes a quarterly newsletter
800-227-2345
ProstateNational Prostate Cancer CoalitionAwareness, outreach & advocacy.
888-245-9455
fightprostatecancer.org
ProstatePatient Advocates for Advanced Cancer TreatmentsPatient package and quarterly newsletter, an association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer.
616-453-1477
paactusa.org
ProsthesisPJ JordanThorough Support for People with Oral, Head and Neck Cancer - A source for information on nose prosthesis
pjjordan@mcvh-vcu.edu (w)804-828-4893, 7:30-3 (lunch 1-2pm)
RadiationRadiology InfoInformation about diagnostic tools and therapies from the American College of Radiology and the Radiological Society of North America.
radiologyinfo.org
RadiationAmerican Society for Radiation OncologyInformation on radiation therapy treatments, including brochures specific to cancer types, and a tool to find local radiation oncologists
astro.org/
RadiationRT Answers - Answers to Your Radiation Therapy Questions from the American Society for Radiation OncologyInfo about radiation treatments and side effects, search engine to find radiation oncologists.
800-962-7876 rtanswers.org or ASTRO.org
RadiationAmerican Brachytherapy SocietyA resource for information on seed implant radiation
703-234-4078 americanbrachytherapy.org
Rare CancersNational Organization for Rare Disorders (NORD)Information including symptoms and treatment for many rare disorders, matches by mail. Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types.  For more information on Patient Assistance Programs visit: rarediseases.org
800-999-6673 - Voice mail only, or 203-744-0100 rarediseases.org
RectalSee Colorectal category aboveSee Colorectal category above
Regional Assistance -Vincent P. Gurucharri MD Foundation - Missouri only, limited countiesFinancial assistance to residents Audraine, Booke, Callaway, Cole, Cooper, Howard, Maniteau and Randolph counties with limited financial resources who are receiving cancer treatment.
573-443-8773 docg.org
Regional Assistance - FloridaGulfcoast Oncology Foundation - Florida only, Tampa Bay areaFinancial assistance for non-medical expenses during cancer treatment
727-821-0017 Ext. 2264 >gulfcoastoncologyfoundation.com/
Regional Assistance - FloridaL.I.G.H.T. of Southwest Florida - Florida only , Lee & Collier countiesAssists insured cancer patients with co-pays for medical care and medicines. Patients must agree to a credit check to verify financial need. Payments go directly to physicians, medical facilities and prescription providers.
lightswfl.org
Regional Assistance - Indiana & KentuckyMichael Quinlan Brain Tumor Foundation - Indiana and Kentucky onlyEducational, emotional, financial and spiritual services for patients in Indiana and Kentucky.
1815 Arboro Pl, Louisville, KY 40220 | phone: 502-896-1701
Regional Assistance - Kansas CityWy/Jo CareWy/Jo Care is a community partnership to improve access to specialty health care for low-income, uninsured residents of Wyandotte and Johnson Counties. It combines care provided in primary care safety net clinics with donated specialty care in a coordinated referral program led by the Medical Society of Johnson and Wyandotte Counties. Patients must meet the following criteria to qualify for Wy/Jo Care:
  • Family income of less than 200% of the Federal Poverty Level Guidelines. For a family of four this is an annual income of less than $41,300.
  • Resident of Wyandotte or Johnson County for at least three months
  • Have no medical insurance
  • Not eligible for government medical assistance, such as Medicare, Medicaid, VA benefits, or HealthWave

phone: 913-403-0544 fax: 913-403-1423 email: wyjocare@msjwc.org
Regional Assistance - Kansas CityKC Medicine CabinetShort-term medical assistance, dentures, glasses, medicines, hearing aids, etc.
Call 211 (United Way info line), ask for Bob Trin.
Regional Assistance - Kansas CityHelping Hand FoundationVery limited assistance to KC area residents with proven, verified need. A patient advocate must make the request - not the patient
913-341-5411 helpingfoundation.org
Regional Assistance - Kansas CityNorthland CARE/MetroCARENorthland CARE/MetroCARE, a primary and specialty care referral network linking safety-net patients with charitable physicians in the community. Northland CARE/MetroCARE is a community partnership to improve access to medical care for low-income, uninsured residents of Jackson, Clay and Platte Counties. Northland CARE/MetroCARE combines care provided by volunteer Northland primary care physicians and safety net clinics with donated specialty care in a coordinated program. Northland CARE/MetroCARE patients will be Jackson, Clay or Platte County residents who are low income, uninsured, ineligible for governmental healthcare programs, and have previously been financially screened.
816-531-8432 or hotline 816-880-6700
Regional Assistance - Los Angeles and surrounding areasBeckstrand Cancer AssociationProvides financial assistance beckstrand.org
Regional Assistance - MinnesotaAngel Foundation - Minnesota onlyGrants for non-medical needs to adult patients referred by doctor or hospital social worker, educational programs for families, summer camp for children of cancer patients
952-830-0519 mnangel.org
Regional Assistance - New YorkCancer Advocacy Project, New York City Bar Fund - New York City OnlyBilingual advice and referrals on employment law, health law and will preparation.
212-382-4785 abcny.org
Regional Assistance - North TexasBridge Breast Network - North Texas onlyThe Bridge Breast Network saves lives by linking low income, uninsured women in the 16-county region of North Texas to diagnostic and treatment services for breast cancer.
877-258-1396 (or 214-821-3820) bridgebreast.org
Relaxation MeditationMind JinglesA CD of six songs for patients and caregivers designed to promote positive attitudes and a sense of well-being. The songs are repetitions of words and phrases on the topics of healing, love, beauty, peace, energy and thankfulness.
866-502-1030 musicalnotes.com
Relaxation MeditationHealthjourneysThey offer a variety of videos, cassettes, CDs, software and books to promote relaxation, wellness and healing that is related specifically to cancer and the effects of chemotherapy and radiation. Products include resources on guided imagery, meditation and self-care.
800-800-8661 healthjourneys.com
Relaxation MeditationCare Trust PublicationsThey offer a variety of resources for self-care including a CD and audio tape for stress reduction and meditation designed for caregivers.
800-565-1533 comfortofhome.com
Relaxation MeditationCenter for Mindfulness in Medicine, Health Care and Society at University of Massachusetts Medical SchoolThey have information on "mindfulness based stress reduction" - a program to promote relaxation and well-being. Resources on stress reduction through meditation, guided imagery and relaxation techniques are available. Topics include "Using your mind and body to face stress, pain and illness."
508-856-2656 umassmed.edu/cfm
Religious affilation - JewishSharsheretSupports young Jewish women and their families facing breast cancer. www.sharsheret.org
ResearchCancer Research InstituteSupports research into immunological treatment, control & prevention.
800-992-2623, 212-688-7515 cancerresearch.org
SarcomaSarcoma.netNews and information about sarcoma clinical trials, educational materials, request online consult with Dr. George Demetri, online host.
617-632-5204
sarcoma.net
SarcomaSarcoma AllianceGuidance, education and support to adult and child sarcoma patients and families, list of sarcoma-specialized cancer centers, discussion board, chat room.
415-381-7236
sarcomaalliance.org
SarcomaSarcoma Foundation of AmericaPatient resources, fund-raiser and advocate for increased research.
301-253-8687
curesarcoma.org
SarcomaThe Liddy Shriver Sarcoma InitiativeSupport and information, electronic newsletter, fund-raising for research. Founded by Bruce & Bev Shriver, whose daughter, 37, died of Ewing's sarcoma.
914-762-3251
liddyshriversarcomainitiative.org
SarcomaThe Alliance Against Alveolar Soft Part SarcomaNORD-affiliated organization with patient registry and information on current treatments and clinical trials.
718-523-7752, 301-253-0854
alveolarspsarcoma.net
Side EffectsShop Well With YouCustomized clothing tips arranged by cancer-related treatments and side-effects; a directory of cancer-specific products such as swimsuits and head coverings, and where to find them; guidance on how to use clothing and accessories to maintain a positive body-image during and after treatment; and articles and books focused on body-image, clothing, cancer, and wellness.
(800) 799-6790, 212-226-0466 shopwellwithyou.org
Side EffectsLook Good-Feel BetterPeople undergoing treatment develop skills to improve their appearance.
ACS program: 800-227-2345
Side EffectsSkin care during radiationOne of our volunteers used this treatment her hospital recommended with good results. Use a mild soap (Tone or Dove) and use cotton towels. In order to minimize skin reaction, use salt-water soaks - mix 1 tsp. table salt in 1 quart warm water, saturate a cotton washcloth in the solution and place over treated area for 10 to 15 minutes. Apply whatever lotion doctor recommends. Start soaks after first week and do twice a day after the 3rd or 4th week.
Side EffectsOncology Nursing Society - Cancer FatigueInteractive website from the Oncology Nursing Society.
cancersymptoms.org
SkinThe Skin Cancer FoundationPublic awareness, supports research, provides educational materials.
800-754-6490
skincancer.org
StatisticsCenters for Disease ControlStatistical information by cancer type and overall, also available in Spanish. Also, an online link to a very interesting Global Cancer Atlas Online that shows where some types are more prevalent than others.
800-CDC-INFO (232-4636) cdc.gov/cancer
SupportNational Coalition for Cancer SurvivorshipSurvivor-led organization advocating quality care.
877-622-7937 canceradvocacy.org
SupportCancerCareCounseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services in person, on phone and online.
800-813-4673 (800-813-HOPE), 212-712-8400 cancercare.org
SupportNational Cancer InstituteAccess to PDQ (Physician Data Query) Information on types of cancer
800-422-6237 (800-4-CANCER) cancer.gov
SupportAmerican Cancer Society800-227-2345 (800-ACS-2345) cancer.org
SupportNational Cancer Survivors Day FoundationFree kits for planning celebration on the first Sunday of June.
615-794-3006 ncsdf.org
SupportCancer Answers800-456-7121
SupportAmerican Society of Clinical OncologyAmerican Society of Clinical Oncologists' patient website providing oncologist-approved information to help people cope and make decisions about their healthcare, monthly Q&A with doctors.
888-651-3038 cancer.net
SupportCancer News on the Netcancernews.com
SupportSurvivorship A-ZComprehensive information advocating quality care
survivorshipatoz.org
SupportLivestrong FoundationCaseworker available for one-on-one counseling and referrals to local resources, help addressing financial and insurance concerns, and clinical trials matching to new treatments in development. Information and tools to "live strong," following LAF philosophy that unity is strength, knowledge is power and attitude is everything in the battle against cancer.
866-467-7205 livestrong.org
SupportACOROnline support group offers information and opportunity to converse with or receive email from other people who have the same type of cancer.
acor.org
SupportAlpha Cancer Information ResourceCoalition of National Cancer Cooperative Groups, providing access to cancer-related health information, allows visitor to interact directly with leading specialists in the field.
alphacancer.com
SupportCancer Support CommunityGilda's Club Worldwide and the Wellness Community merged in May 2009. Build social and emotional support as a supplement to medical care in a free, nonresidential, homelike setting. All kinds and stages of cancer, families and friends. Locations in U.S. and Canada. Support, education and hope for patients, families.
888-793-9355 cancersupportcommunity.org/
Support (for children dealing with parent who has cancer)Children's Treehouse FoundationProvides hospital-based, cancer-focused, psychosocial intervention training and programming dedicated to improving the emotional health of children whose parents have cancer. childrenstreehousefdn.org/
TesticularSociety of Urologic OncologyWebsite has an online member referral service
847-264-5901
societyofurologiconcology.org
TesticularLance Armstrong Foundation 866-467-7205,
laf.org livestrong.org
ThyroidAmerican Thyroid AssociationWebsite lists members by state or country, with subspecialties.
800-849-7643, 703-998-8890
thyroid.org
ThyroidThyCa: Thyroid Cancer Survivors AssociationSupport, education and communication for survivors, families and friends. Raises research funding and holds an annual conference. Website has downloadable low-iodine cookbook and newsletter.
877-588-7904
thyca.org
ThyroidAnaplastic Thyroid Cancer specialistHe treated Bloch Cancer Hotline HV Bob Legler
Paul Ladenson, Kimmel Cancer Center, Johns Hopkins University 410-955-3663
TransportationAir Compassion for VeteransAffiliated with National Patient Travel Center - medically related air transport services to troops, veterans their immediate family members.
888-662-6794 AirCompassionForVeterans.org
TransportationAir Compassion AmericaAffiliated with National Patient Travel Center - patient travel  requires air ambulance and medical monitoring en route.
866-270-9198 AirCompassionAmerica.org
TransportationCorporate Angel NetworkAffiliated with National Patient Travel Center - Arrange free air transportation for cancer patients and bone marrow donors to/from cancer treatment centers nationwide. No financial requirements or limits on number of flights. Patients must be able to walk/travel without life support.
866-328-1313 corpangelnetwork.org
TransportationStretcher Patient TransportAffiliated with National Patient Travel Center - a federally-approved stretcher equipped Beech 36 aircraft (the Bonanza) to transport patients who must be lying down en route but do not require any medical attention en route. The Bonanza is based out of Manassas, Virginia and serves the Mid-Atlantic States. The service is provided free of charge to eligible patients.
800-296-3797
TransportationAngel Flight AmericaFree air transportation for people in need to specialized healthcare facilities or distant destinations due to a family, community or national crisis.
888-426-2643 (888-4-AN-ANGEL) angelflightwest.org
TransportationNational Patient Travel CenterFree referral for patients needing airline transportation to distant specialized treatment facilities.
800-296-1217 patienttravel.org
TransportationAngel BusAffiliated with National Patient Travel Center - nonprofit corporation dedicated to providing compassionate, non-emergency long-distance ground transportation using motor coaches and their volunteer drivers as well as commercial bus service.
757-333-0084 angel-bus.org
TransportationAir Charity NetworkProvides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. aircharitynetwork.org/
Treatment InformationAssociation of Community Cancer Centers (ACCC)Provides listings of member organizations and standards for cancer treatment and care. 301-984-9496 accc-cancer.org
Treatment InformationFDA Cancer Liaison ProgramInformation about the FDA drug approval process, clinical trials, and access to investigational therapies.
888-463-6332 Cancer Liaison Program
Treatment InformationCancer Research InstituteCRI Helpbook provides information on how to talk to doctor when diagnosed, information about treatments and clinical trials, and a resource directory.
800-992-2623 canceresearch.org
Treatment InformationOncoLinkoncolink.upenn.edu Cancer information by type of cancer oncolink.org by cancer type
Treatment InformationNational Library of MedicineAccess to the National Library of Medicine for literature searches. Access to Medline to search for major medical journal articles by topic.
nlm.nih.gov
UterineIn My Sister's CareA national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
212-802-7686, 202-607-1883
inmysisterscare.org
UterineThe Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF)Awareness for preventing, detecting and treating gynecological cancers and supports research and training.
800-444-4441
foundationforwomenscancer.org/
UterineEyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org
Vaginal Eyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org
VulvarEyes on the PrizeWomen with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. eyesontheprize.org/
Wigs & HairWigged OutimWiggedOut.com
Wigs & HairPaula Young Catalog800-343-9695
Wigs & HairLocks of LoveHairpieces to financially disadvantaged children under age 18 with medical hair loss. Free, or sliding scale.
888-896-1588 locksoflove.org
Young AdultsPlanet CancerAn online community for young cancer patients (teens to 30s) and their supporters, similar to Facebook and MySpace. Protected website, lots of response to new pages.
planetcancer.org
Young AdultsThe Ulman Cancer Fund for Young AdultsSupport programs, education and resources to benefit young adults, their families and friends who are affected by cancer. Partner with Imerman Angels.
888-393-3869 (888-393-FUND) ulmanfund.org
Young AdultsI'm Too Young For This Cancer FoundationSurvivor-led advocacy, support and research organization for survivors and care providers under age 40.
877-735-4673 imtooyoungforthis.org
Young AdultsStupid CancerEmpowers young adults affected by cancer through innovative programs and services. stupidcancer.org/
Young AdultsImerman AngelsPeer-to-peer counseling, emphasis on young patients
877-274-5529 ImermanAngels.org