This is one BIG list of cancer support organizations. Here you’ll find organizations supporting specific types of cancer, organizations offering financial aid, patient matching services, meditation, transportation, wigs, and on and on. Some organizations are duplicated in several categories. We hope you’ll easily find what you need — please let us know of any changes we should make or if you have any problems or questions. HotLine@BlochCancer.org 800-433-0464.
Our BIG List of Cancer Support Organizations
At the moment, there are around 350 organizations listed. You can SORT the list by clicking a column heading, and limit displayed organizations to those containing any SEARCH term you enter.| Category | Organization | Description | |
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| Abdominal | PMP Pals | The PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter 831-424-4545 pmppals@yahoo.com pmppals.org |
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| Adrenal | University of Michigan Cancer Center | Endocrine Oncology Program Gary D. Hammer, M.D., Ph.D., Director 734-615-4551, 734-647-8906 umich.edu cancertreat endocrine theclinic.shtml |
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| Adrenal | Adrenocortical Carcinoma | Information on treatments, cancer centers that have adrenocortical carcinoma, including names of doctors and links and/or email addresses. Also have a closed group for patients, doctors and researchers accessible by invitation only. Established by the founder of the Beverlin Adrenocortical Carcinoma Research Fund at M.D. Anderson, whose wife had adrenal cancer. beverlin@ix.netcom.com adrenocorticalcarcinoma.com |
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| Amputation | American Amputee Foundation | Provides information, self-help materials, and referral services. 501-835-9290 americanamputee.org |
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| Amputation | L.E.A.P.S. Across the Heartland | Assists amputees with the loss of a limb by helping the individual through example and educational resources. Links to other amputee organizations 816-361-3206 angelfire.com/mo/LEAPSamps |
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| Appendix | APCAN - appendiceal cancer advocacy network | Online services. Resouces, support, physician referral, e-newsletter. Information on Treatment options, Clinical Trials, and Healthy living. APCAN 2825 McKinley Place NW Washington, DC 20015 APCAN.org |
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| Appendix | The Appendix Cancer Connection | Appendiceal cancer blog providing education, support and hope to those diagnosed with Appendix Cancer and Peritoneal Surface Malignancie. Includes physician referrals and e-newsletter appendix-cancer.com |
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| Appendix | PMP Pals | The PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter 831-424-4545 pmppals@yahoo.com pmppals.org |
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| Bladder | Society of Urologic Oncology | Website has an online member referral service 847-264-5901 societyofurologiconcology.org |
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| Bladder | American Urological Association Foundation | Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs. 800-242-2383 urologyhealth.org auafoundation.org |
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| Bladder | Bladder Cancer Advocacy Network | Connect with others dealing with bladder cancer through an online community, accessible through the website. bcan.org/ |
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| Bone Marrow & Stem Cell Transplantation | BMT Support Online | Weekly online support groups for patients/survivors and caregivers. bmtsupport.org |
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| Bone Marrow & Stem Cell Transplantation | Blood and Marrow Transplant Information Network | Patient-friendly handbooks, quarterly newsletter, links with patients and survivors for emotional support, online directories of resources, U.S.& Canada transplant centers, and drugs used during transplant. Attorney referrals for insurance disputes. 888-597-7674 (Answering machine, must leave a message)847-433-3313 bmtinfonet.org/ |
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| Bone Marrow & Stem Cell Transplantation | National Bone Marrow Transplant Link | Peer support for patients, families and caregivers, plus information, resources, video, booklets. Partner hospitals: Children's Hospital of Michigan City of Hope Cancer Center Dana-Farber Cancer Institute Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance Henry Ford Transplant Institute Karmanos Cancer Institute Mayo Clinic Memorial Sloan-Kettering Cancer Center Northside Hospital OHSU Center for Hematologic Malignancies University of Michigan Comprehensive Cancer Center University of Minnesota Medical Center, Fairview Blood and Marrow Transplant Program The University of Texas M. D. Anderson Cancer
800-546-5268 (800-LINK-BMT) nbmtlink.org |
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| Bone Marrow & Stem Cell Transplantation | Heart of America Bone Marrow Registry - Be the Match - A program of the National Marrow Donor Program | Information to potential donors, patient advocacy, insurance information, transplant centers, help to initiate treatments. 800-654-1247 |
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| Bone Marrow & Stem Cell Transplantation | American Society for Blood and Marrow Transplantation | Guidelines for clinical centers, training and searchable texts of articles. 847-427-0224 asbmt.org |
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| Bone Marrow & Stem Cell Transplantation | National Marrow Donor Program - Be the Match | The National Marrow Donor Program® (NMDP) operates the Be The Match RegistrySM and partners with a global network of leading hospitals, blood centers, cord blood banks and laboratories. As a leader in the field of marrow and cord blood transplantation, the NMDP facilitates transplants worldwide, conducts research to improve survival and quality of life, and provides education to patients and health care professionals. Together with its fundraising partner, Be The Match FoundationSM, the NMDP is dedicated to creating an opportunity for all patients to receive the transplant therapy they need. Since operations began in 1987, the NMDP has provided more than 35,000 transplants to help give patients a second chance at life. For more information, visit BeTheMatch.org or call 1 (800) MARROW-2. Congressionally authorized network maintains a national computer database of available tissue-typed marrow donor volunteers. Printed information for patients and caregivers available. Provides financial assistance for patients who need help with costs. Funds medical research 800-627-7692 (800-MARROW-2), 888-999-6743 Patient advocacy line marrow.org |
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| Bone Metastasis | The Paget Foundation | Bone and Cancer Foundation is now a program of the Paget Foundation for Paget's Disease of Bone and Related Disorders. Information and referrals for people whose cancer has metastasized to the bone, particularly in breast, prostate, lung, as well as other types. Some physician referrals as well. 800-237-2438 (800-23-PAGET) boneandcancerfoundation.org |
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| Brain | Meningioma Support and Information List | a message board, chat room, and news announcement for those interested in meningiomas. Visit as a guest and register meningioma.webexone.com |
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| Brain | Brain Trust - The Healing Exchange | Information and online support groups for brain tumor patients, families and supporters. 617-623-0066 braintrust.org |
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| Brain | Brain Injury Alliance/Michael Quinlan Brain Tumor Foundation | educational, emotional, financial and spiritual services. The foundation provides financial assistances for Indiana and Kentucky Cindy Rosser, Support Coordinator 493-0609 x 27 cindy.rosser@biak.us biak.us/node/182 |
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| Brain | Pediatric Brain Tumor Foundation | Supports the cause and cure of childhood brain tumors through funding medical research, provides patient and family support, resource and educational materials, advocates for increased awareness, hosts series of worldwide internet conferences to provide information and support to families, and provides scholarships to pediatric brain tumor survivors. 800-253-6530 pbtfus.org curethekids.org rideforkids.org |
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| Brain | Children's Brain Tumor Foundation | Resource guide (English/Spanish) for parents of children with brain or spinal cord tumors, newsletter, family-to-family support, funds research, and co-sponsors phone and internet conferences for families, survivors and healthcare professionals. 866-228-4673 cbtf.org childrensneuronet.org |
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| Brain | Meningioma Mommas | an online support group for women with a meningioma meningiomamommas.org/ |
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| Brain | Meningioma Tumor List | for meningioma patients and their caregivers. This list is run by Johns Hopkins Medical Center's Radiosurgery Department. You need not have undergone radiosurgery to subscribe. To sign up, visit meningioma sign-up Look for the "Connect! Join the Meningioma List" graphic and enter your e-mail address. You'll receive an e-mail confirmation. radiosurgery disorders meningioma.asp |
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| Brain | Kansas City Brain Tumor Support Group | Cancer patients and family meet monthly with professionals and persons who have experienced brain tumors to discuss diagnostic procedures, treatments, common problems, etc. Meets at 7 p.m. on the 2nd Tuesday of the month across from St. Luke's Hospital in the boardroom of the Specialists in Cancer Care Office, Medical Plaza III, 4321 Washington, Suite 4000, Kansas City, MO. 816-932-6220 |
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| Brain | American Brain Tumor Association | Provides publications on different types of tumors and a booklet, "Primer of Brain Tumors." Has list of support groups nationwide and list of doctors involved in investigative treatment for both children and adults. Also has pen-pal program for patients. 800-886-2282, 847-827-9910 abta.org |
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| Brain | National Brain Tumor Society | Patient services and support for brain tumor research 800-770-8287 800-934-2873 (patient services) braintumor.org |
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| Brain | The Meningioma List | for men and men with a meningioma. Hosted by The Healing Exchange BRAIN TRUST. To subscribe go to www.braintrust.org/meningioma.htm braintrust.org/meningioma.htm |
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| Breast | Breastcancer.org | Medical information breastcancer.org |
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| Breast | Support Connection | Breast & ovarian hotline and telephone support group 800-532-4290 supportconnection.org |
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| Breast | In My Sister's Care | A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations 212-802-7686, 202-607-1883 inmysisterscare.org |
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| Breast | Susan G. Komen for the Cure | 800-462-9273 (800-I'M-AWARE) komen.org kckomen.org breastcancerinfo.com |
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| Breast | Breast Cancer Network of Strength (formerly Y-Me) | National organization providing informational materials about breast cancer and volunteers who can assist breast cancer patients by telephone. Provides a newsletter and publications. Interpreters available. 800-221-2141 networkofstrength.org |
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| Breast | Breast Cancer Foundation of the Ozarks, Springfield | Provides short-term non-medical financial assistance for residents of southwest Missouri and the 4 state region. Provides free mammography screenings, children's fund, and support groups. 417-862-3838, 866-874-1915, Fax: 417-862-3830 bcfo.org |
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| Breast | Breast and Cervical Cancer Project | Show-Me Healthy Women, MO Dept. of Health. Provides free mammograms and Pap smears to uninsured and underinsured. Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations. 573-522-2848 showmehealthywomen |
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| Breast | Triple Negative Breast Cancer Foundation | Information and anecdotal stories from patients/survivors tnbcfoundation.org |
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| Breast | FORCE (Facing Our Risk of Cancer Empowered) | Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer. Also has peer-to-peer matching service. 866-824-7475 (RISK) facingourrisk.org |
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| Breast | YWCA USA | Helps medically underserved women in need of early detection through its ENCORE Plus program, education, breast and cervical cancer screening, and support services. 800-222-4738 ywca.org |
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| Breast | Share | Programs for breast cancer patients and their families, helpline staffed by peer counselors, library, support group information. 866-891-2392 sharecancersupport.org |
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| Breast | National Breast Cancer Coalition | Action & advocacy group 800-622-2838, 202-296-7477 stopbreastcancer.org |
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| Breast | Young Survival Coalition (Kansas City Matches) | Group of young breast cancer survivors (National) 212-206-6610 youngsurvival.org |
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| Breast | Metastatic Breast Cancer Network | MBCN Head office in New York can direct you to the your local affiliate. mcbn@mbcn.org 888-500-0370 http://mbcn.org Raises awareness of metastatic breast cancer. Strives to help those living with metastatic breast cancer be their own best advocate through programs, education, & information on better treatments and coping with the disease. |
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| Breast | My Pink Planner | Free online service that helps friends coordinate meals and other support for breast cancer patients. Dolores Quinn Kitchin 816-674-7760 mypinkplanner.com |
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| Breast | Young Survival Coalition (Kansas City) | Group of young breast cancer survivors with affiliates in Kansas City and some other communities. Sami Papacek 913-742-8846 ysckansascity@youngsurvival.org youngsurvival.org |
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| Breast | Sisters Network Inc. | African-American breast cancer survivorship organization, individual/group support, community education, advocacy and research 713-781-0255, 866-781-1808 sistersnetworkinc.org |
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| Breast | National Breast Cancer Foundation | Founded by breast cancer survivor, goal is increasing awareness of breast cancer through education and by providing mammograms for those in need. nationalbreastcancer.org |
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| Breast | Reach to Recovery | Kansas City area local program sponsored by American Cancer Society. Trained volunteers visit women who have had surgery for breast cancer and will provide information about breast reconstruction for those who request it. Nationally, contact nearest ACS chapter or cancer.org 913-432-3277 cancer.org |
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| Breast | Young Survival Coalition (Kansas City Matches) | Point of Contact Program - Kansas City Matches for patients under age 45 913-579-4454 reneelthomas@aol.com youngsurvival.org |
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| Breast | Mothers Supporting Daughters with Breast Cancer | National organization formed by a mother-daughter team. Publishes a handbook for mothers and a brochure for daughters that are provided to assist these family members in helping each other. 410-778-1411 mothersdaughters.org |
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| Canada | Canadian Cancer Society | cancer information services, peer support, local community services, local offices 888-939-3333, 412-961-7223 - National office cancer.ca |
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| Canada | Carcinoid NeuroEndocrine Tumour Society of Canada | Provides information on carcinoid-specific support groups in Canada and conducts workshops. 416-544-8467 cnetscanada.org |
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| Canada | Hope & Cope | Survivor matching, support, patient education, wigs (etc.), quarterly magazine (bilingual, English/French) and more at Jewish General Hospital, Segal Cancer Centre 514-340-8222, Ext. 8255 HopeCope ENGLISH or HopeCope FRENCH |
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| Carcinoid | Susan Anderson's Carcinoid Info | Arizona carcinoid survivor's site with lots of information, resources, survivor stories. SunnySusan@Cox.Net carcinoidinfo.info |
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| Carcinoid | Carcinoid NeuroEndocrine Tumour Society of Canada | Provides information on carcinoid-specific support groups in Canada and conducts workshops. 416-544-8467 cnetscanada.org |
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| Carcinoid | Carcinoid Cancer Foundation | Medical, testing and drug information for carcinoid patients, encourages and supports research and education on carcinoid-related neuroendocrine cancers. 888-722-3132 carcinoid.org |
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| Caregivers & Supporters | Cancer Care | Counseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services in person for the tri-state area, on phone and online for all U.S. 800-813-4673 (800-813-HOPE) cancercare.org |
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| Caregivers & Supporters | Well Spouse Foundation | A national membership organization that gives support to husbands, wives and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses. 800-838-0879 wellspouse.org |
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| Caregivers & Supporters | Kids Konnected | Friendship, education, support and newsletter for kids of cancer patients. 800-899-2866 kidskonnected.org |
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| Caregivers & Supporters | National Students of AMF (Ailing Mothers & Fathers) Support Network | Supports grieving college students and raises awareness about their needs. Establishes campus chapters, provides interactive e-support online, awards scholarships, funds adolescent bereavement studies, conducts conferences on college student bereavement. email David Faigenbaum caregiver.org. |
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| Caregivers & Supporters | Family Connections Program, Dana-Farber Cancer Center, Boston | Identify and respond to the needs of parents and children through supporting, supplementing, and empowering parent and child coping as a family. Resources and relevant information offer guidance to help families manage the impact of cancer on their lives. 617-632-4020 Family Connections |
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| Caregivers & Supporters | Friends' Health Connection | Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges. 800-483-7436 48friend.org |
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| Caregivers & Supporters | Kidscope | Online publications available for download. Basic information about what to expect and how children cope with issues surrounding a parent's disease and treatment kidscope.org/kids.html |
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| Caregivers & Supporters | Rosalynn Carter Institute for Human Development | RCI provides educational programs for caregivers, conducts research, and disseminates information about caregiving. 229-928-1234 rci.gsw.edu or rosalynncarter.org |
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| Caregivers & Supporters | National Alliance for Caregiving | Helps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information. caregiving.org |
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| Caregivers & Supporters | National Family Caregivers Association | Education, support, respite care and advocacy for caregivers, including support groups. Free memberships to U.S. caregivers. 800-896-3650 info@nfcares.org nfcacares.org |
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| Cervical | Cervical Health | cervicalhealth.com |
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| Cervical | Breast and Cervical Cancer Project (Show me Healthy Women) | Missouri Department of Health program provides free mammograms and Pap smears to uninsured and underinsured. KC contact: Marney Robinson, Truman West 816-373-4485, X4005. Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations. 573-876-3273 |
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| Cervical | National Cervical Cancer Coalition | YWCA USA Helps medically under-served women in need of early detection, education, breast and cervical cancer screening, and support services. 202-467-0801, (800) 222-4738 nccc-online.org ywca.org |
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| Cervical | In My Sister's Care | A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations 212-802-7686, 202-607-1883 inmysisterscare.org |
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| Cervical | The Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF) | Awareness for preventing, detecting and treating gynecological cancers and supports research and training. 800-444-4441 foundationforwomenscancer.org/ wcn.org |
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| Chemotherapy | By My Side | Information on chemotherapy side effects and more from Amgen, maker of Neulasta (white blood cell count stimulator) chemotherapy.com |
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| Childhood | National Childhood Cancer Foundation | Supports pediatric cancer treatment and research projects and provides a network for pediatric cancer specialists. The website offers facts about childhood cancer, clinical trials, links to other information sources, news and events, and a way to search for clinical trial protocols and Children's Cancer Group Specialists. 800-458-6223 curesearch.org |
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| Childhood | Candlelighters Childhood Cancer Foundation | Organization for parents of children who have cancer, coordinated locally by Children's Mercy Hospital. Toll-free number provides regional information about camps for children with cancer, support groups for parents and/or children, and educational information. 800-366-2223 (816-234-3266 Pat Brown KC local area) candlelighters.org |
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| Childhood | St. Jude Children's Research Hospital | No-fee care in Memphis, TN 866-278-5833 stjude.org |
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| Childhood | Starlight Foundation | Wish-granting, entertainment, education and family activities for seriously ill children and their families. 310-479-1212 starlight.org |
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| Childhood | Children's Hospice International | Support and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological and spiritual expertise and information. 800-2-4-CHILD (800-242-4453) chionline.org |
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| Childhood | Childhood Leukemia Center | Online copy of Childhood Leukemia - A Guide for Families, Friends and Caregivers. patientcenters.com/leukemia |
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| Childhood | Make-A-Wish Foundation | Grants wishes of children with terminal or life-threatening illnesses. 800-722-9474 wish.org |
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| Childhood | Children's Brain Tumor Foundation | Resource guide (English/Spanish) for parents of children with brain or spinal cord tumors, newsletter, family-to-family support, funds research, and co-sponsors phone and internet conferences for families, survivors and healthcare professionals. 866-228-4673 cbtf.org childrensneuronet.org |
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| Childhood | National Children's Leukemia Foundation | Comprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care. 800-448-3467, In NY: 718-251-1222 leukemiafoundation.org |
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| Childhood | National Children's Cancer Society | Mission is to improve quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education. 800-532-6459 children-cancer.com |
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| Childhood | Kids Konnected | Friendship, education, understanding, support and newsletter for kids who have a parent with cancer. 800-899-2866 kidskonnected.org |
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| Childhood | Trish Greene Back To School Program | Fosters communication among healthcare professions, parents, young patients and school staff in preparation for the return to school and other activities. Information, including "Touching Lives" resource directory, videos and more. 800-955-4572 leukemia-lymphoma.org |
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| Childhood | Kids Cancer Network | Bimonthly magazine (English/Spanish), resource center, pen-friends, prayer network and "your story" sharing area. kidscancernetwork.org |
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| Childhood | CureSearch National Childhood Cancer Foundation & The Children's Oncology Group | Supports the work of CureSearch Children's Oncology Group at more than 200 member institutions. Represents every pediatric cancer program in North America, treating more than 90% of children with cancer. 800-458-6223 CureSearch.org |
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| Childhood Cancer | American Childhood Cancer Organization - Candlelighters Childhood Cancer Foundation | Organization for parents of children who have cancer, coordinated in Kansas City by Children's Mercy Hospital. Toll-free number provides regional information about camps for children with cancer, support groups for parents and/or children, and educational information. 800-366-2223 (Local contact Pat Brown, 816-234-3266) candlelighters.org or acco.org |
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| Childhood Cancer | Kids Konnected | Friendship, education, support and newsletter for kids who have a parent with cancer. 800-899-2866 kidskonnected.org |
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| Childhood Cancer | Children's Brain Tumor Foundation | Resource guide for parents of children with brain or spinal cord tumors. Communication through e-mail only. 212-448-9494 childrensneuronet.org |
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| Childhood Cancer | Childhood Leukemia Center | You may purchase the book, Childhood Leukemia - A Guide for Families, Friends and Caregivers. 800-889-8969 to order books through O'Reilly Publishing. Contact with Foundation is through mail only. Childhood Cancer Guides 1005 Gravenstein Highway North Bellingham WA 98228 800-889-8969 patientcenters.com/leukemia |
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| Childhood Cancer | Childhood Brain Tumor Foundation | Resource guide (English/Spanish), newsletter, parents network, teleconference and funds research. 866-228-4673 cbtf.org |
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| Childhood Cancer | Make-A-Wish Foundation | Grants wishes of children with terminal or life-threatening illnesses. 800-722-9474 wish.org |
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| Childhood Cancer | Children's Hospice International | Support and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological and spiritual expertise and information. 800-243-4453 chionline.org |
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| Childhood Cancer | Trish Greene Back To School Program- a program of the Leukemia/Lymphoma Society | Fosters communication among healthcare professions, parents, young patients and school staff in preparation for the return to school and other activities. Information, videos and more. 800-955-4572 leukemia-lymphoma.org |
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| Childhood Cancer | National Children's Leukemia Foundation | Comprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care. 800-448-3467 (800-GIVE-HOPE), In NY: 718-251-1222 leukemiafoundation.org |
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| Childhood Cancer | Starlight Foundation | Wish-granting, in-hospital entertainment. 800-315-2580 starlight.org |
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| Childhood Cancer | CureSearch National Childhood Cancer Foundation | Supports the work of CureSearch Children's Oncology Group at more than 200 member instituteions. Represents all North American pediatric cancer programs, treating more than 90% of pediatric cases. 800-458-6223 CureSearch.org |
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| Childhood Cancer | National Children's Cancer Society | Direct financial assistance and emotional support to children with cancer and their families. 800-532-6459 children-cancer.com |
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| Childhood Cancer | Ulman Cancer Fund for Young Adults: National College Scholarship Program | Offers three scholarships for young adult cancer survivors diagnosed after the age of 15 and are currently under the age of 35. In addition, the organization offers scholarships for young adults who have a parent living with a cancer diagnosis, or who have lost a parent to cancer. 888-393-FUND (3863) ulmanfund.org |
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| Childhood Cancer | National Childhood Cancer Foundation | Supports pediatric cancer treatment and research projects and provides a network for pediatric cancer specialists. The website offers facts about childhood cancer, clinical trials, links to other information sources, news and events, and a way to search for clinical trial protocols and Children's Cancer Group Specialists. 800-458-6223 curesearch.org |
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| Childhood Cancer | Pediatric Brain Tumor Foundation | Supports the cause and cure of childhood brain tumors through funding medical research, provides patient and family support, resource and educational materials, advocates for increased awareness, hosts series of worldwide internet conferences to provide information and support to families. 800-253-6530 pbtfus.org |
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| Clinical Trials | National Cancer Institute | clinicaltrials.gov | |
| Clinical Trials | Coalition of Cancer Cooperative Groups | Search engine, interactive training guide and patient discussion forum. 877-520-4457 cancertrialshelp.org |
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| Clinical Trials | Center Watch | The global source for clinical trials information: offering news, analysis, study grants, career opportunities, and trial listings to professionals and patients. centerwatch.com |
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| Cholangiocarcinorma | The Cholangiocarcinoma Foundation | Provides help for patients and caregivers, advocates for those afflicted and educates those who do not understand. First step for those newly diagnosed. Patient support includes discussion boards, faces of cholangiocarcinoma, calendar of events, Ask Dr. Giles, health and nutrition cholangiocarcinoma.org |
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| Co-pays & Other Medical Costs | National Health Service Corps | Federally-funded health centers offer free or reduced-cost care in areas with few private resources, even for those without health insurance. 877-313-1823 findahealthcenter.hrsa.gov/Search_HCC.aspx |
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| Co-pays & Other Medical Costs | Fertile Hope | Fertile Hope is a LIVESTRONG > initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. If you have fertility-related questions or would like more information related to the Sharing Hope assistance program call toll-free 866-965-7205 Online intake form - complete this form for the LIVESTRONG SurvivorCare program. http://fertilehope.org |
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| Co-pays & Other Medical Costs | National Leukemia Research Association | Financial assistance to patients of all ages for x-ray therapy, chemo and leukemia-related lab fees. 516-222-1944 childrensleukemia.org |
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| Co-pays & Other Medical Costs | HealthWell Foundation | Help with out-of-pocket costs for prescription copays, coinsurance, deductibles and health-care premiums for patients with breast cancer. carcinoid tumors and related symptoms, chemotherapy induced anemia/neutropenia, colorectal cancer, cutaneous T-cell lymphoma, glioblastoma multiforme/anaplastic astrocytoma, head and neck cancer, Hodgkin's Disease, non-Hodgkin's lymphoma, non-small cell lung cancer and Wilm's Tumor. 800-675-8416 healthwellfoundation.org |
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| Co-pays & Other Medical Costs | National Organization of Rare Disorders (NORD) | Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org/programs/medication 215-625-9609 rarediseases.org |
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| Co-pays & Other Medical Costs | Patient Access Network Foundation | Co-payment assistance to help underinsured patients access the medical attention and treatment they need to sustain a reasonable quality of life. Assistance can range from $1,500 to $8,000 a year, depending on the diagnosis and availability. Eligible cancers include breast, colorectal, multiple myeloma, non-Hodgkin's lymphoma, non-small cell lung cancer, and pancreatic cancer. Website shows current status of funding for each cancer type. 866-316-7263 https://www.panfoundation.org |
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| Co-pays & Other Medical Costs | Patient Advocate Foundation | PAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo. English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org Underinsured Directory -search tool for patients with inadequate insurance who need financial assistance Financial assistance resources listed by STATE |
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| Co-pays & Other Medical Costs | CancerCare Co-Payment Assistance Foundation | Helps patients who can't afford co-payments on treatments for breast, lung, colorectal or pancreatic cancer. English and Spanish spoken. 866-552-6729 cancercarecopay.org |
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| Co-pays & Other Medical Costs | Healthy Women Program, CDC | Uninsured women with low to moderate incomes with breast cancer, cervix cancer or a primary breast cancer metastases may be eligible for free treatments, including radiation therapy. 800-232-4636 (CDC-INFO) cancercontacts nbccedp contacts.asp |
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| Co-pays & Other Medical Costs | The Lois Merrill Foundation | Accepts applications year-round from carcinoid/neuroendocrine tumor patients, and patients with other rare cancers, for medical expense assistance. Apply online or by mail at 1050 Island Ave., #517, San Diego, CA 92101 theloismerrillfoundation.org |
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| Co-pays & Other Medical Costs | Children's Leukemia Research Association | Helps pay for care not covered by insurance. 516-222-1944 |
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| Co-pays & Other Medical Costs | Lymphoma Research Foundation, Inc. | Limited financial assistance for uninsured and underinsured lymphoma patients undergoing treatment. Free helpline and information service for referrals to financial assistance programs, legal and insurance help. 800-235-6848, 800-500-9976 lymphoma.org |
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| Co-pays & Other Medical Costs | National Brain Tumor Society | Financial assistance referrals 800-934-2873 Patient Services braintumor.org/ |
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| Co-pays & Other Medical Costs | National Association of Free Clinics | Has list by state of free clinics in U.S. 703-647-7427 freeclinics.us |
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| Co-pays & Other Medical Costs | American Childhood Cancer Organization / Candlelighters | List of groups to which eligible families may apply for financial help. 800-366-2223 candlelighters.org |
|
| Co-pays & Other Medical Costs | Leukemia & Lymphoma Society | Up to $500 per year supplementary help to patients with blood-related cancers. 800-955-4572 leukemia-lymphoma.org |
|
| Co-pays & Other Medical Costs | The Max Foundation | Helps match patients with blood-related cancers with sources of financial assistance. 888-462-9368 themaxfoundation.org |
|
| Co-pays & Other Medical Costs | Bone Marrow Foundation | Up to $1,000 to cover donor search, housing, transportation & medication, primarily on the East Coast 800-365-1336 bonemarrow.org |
|
| Co-pays & Other Medical Costs | Kristy Lasch Miracle Foundation | Up to $500 per year supplementary help to patients with blood-related cancers. 412-872-4125 kristylasch.org |
|
| Co-pays & Other Medical Costs | Hill-Burton Act | Requires hospitals that receive federal funding to provide free or low-cost care to the surrounding community. Provides doctor referrals. 888-275-4772 http:// hrsa.gov/gethealthcare/affordable/hillburton/ |
|
| Colon | Colon Cancer Alliance | Treatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer. 877-422-2030, 202-628-0123 ccalliance.org |
|
| Colorectal | C3: Colorectal Cancer Coalition | Advocacy group's site includes a guide to diagnosis and treatment options and a range of resources. 877-427-2111, 703-548-1225 fightcolorectalcancer.org |
|
| Colorectal | Colon Cancer Alliance | Treatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer. 877-422-2030, 202-628-0123 ccalliance.org |
|
| Complementary & Integrative Care | Cancerbackup - Macmillan Cancer Support | Complementary Therapies (British site) | |
| Complementary & Integrative Care | Integrative Medicine Program, M.D. Anderson Cancer Center | Reviews, continuing education opportunities, communication techniques, drug interaction advisories and other information, for use in discussing and advising patients wanting to use these therapies. 877-632-6789 (877-MDA-6789) mdanderson.org/cimer |
|
| Complementary & Integrative Care | The Annie Appleseed Project | Natural therapies from the cancer patient perspective 561-749-0084 annieappleseedproject.org |
|
| Complementary & Integrative Care | Complementary/Integrative Medicine, National Cancer Institute | cancer.gov/cancertopics/treatment/cam | |
| Depressioni | American Psychosocial Oncology Society | Helpline connects cancer patients and their caregivers to psychiatrists, psychologists, nurses, social workers and counselors skilled in the management of cancer-related distress. Intake by voicemail results within 24-48 hours in referrals for local counseling services or, if none are nearby, counseling via telephone. 866-276-7443 apos-society.org |
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| detailed on-line information | American Society of Clinical Oncology | cancer.net | |
| detailed on-line information | CancerConsultants | part of the Cancer Information Network cancerconsultants.com |
|
| detailed on-line information | National Cancer Institute | cancer.gov | |
| detailed on-line information | National Cancer Institute | Access to PDQ (Physician Data Query) Information on types of cancer 800-422-6237 (800-4-CANCER) cancer.gov |
|
| detailed on-line information | WebMD | webmd.com/cancer/default.htm | |
| detailed on-line information | University of Michigan Comprehensive Cancer Center | cancer.med.umich.edu/cancertreat/index.shtml | |
| Diet & Nutrition | American Institute of Cancer Research | National group specializes in diet, nutrition and cancer. 800-843-8114 aicr.org |
|
| Diet & Nutrition | The Oley Foundation | Educational and emotional support, outreach activities, clinical outcomes information for people whose daily survival depends on home intravenous or tube-fed nutrition. 800-776-6539 oley.org |
|
| Diet & Nutrition | American Dietetics Association | Search by state for registered dietitians who specialize in oncology nutrition. 800-877-1600 eatright.org |
|
| Doctors' Background Information | Vitals | No-fee website with empirical information on a doctor's quality and expertise, consumer ratings and reviews, and recommendations from other doctors. 201-842-0760 vitals.com |
|
| Doctors' Background Information | American Cancer Society | Medical equipment, respiratory services and home infusion. Identifies fee for service companies or call local office for a list of agencies. 800-227-2345 (National), 816-218-7171 (Local) cancer.org |
|
| Esophageal | Esophageal Cancer Awareness Association | Provides education, resources and information for people with esophageal cancer, including website newsletter. 866-370-3222 ecaware.org |
|
| Esophagus | Esophageal Cancer Awareness Association | Provides education, resources and information for people with esophageal cancer, including website newsletter. 866-370-3222 ecaware.org |
|
| Ethical Questions | Center for Practical Bioethics | Addresses the practical needs of those dealing with healthcare dilemmas in the Kansas City metropolitan area, regionally and nationally. Through education, consultation, and public engagement, the Center has helped patients and their families, healthcare professionals, policymakers, and corporate leaders grapple with ethically complex issues in health and healthcare. 800-344-3829, 816-221-1100 (local) practicalbioethics.org/ |
|
| Fertility | Fertile Hope | Is a LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Reproductive Information, support and hope for survivors whose treatments present the risk of infertility. 866-965-7205 fertilehope.org |
|
| Fertility | Oncolink - Fertility and Cancer | Information for both men and women on fertility and cancer treatments. oncolink.org/ |
|
| Finncial Planning & Debt Management | Patient Advocate Foundation | PAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo. English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org Underinsured Directory -search tool for patients with inadequate insurance who need financial assistance Financial assistance resources listed by STATE |
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| Finncial Planning & Debt Management | National Foundation for Credit Counseling | Provides consumer credit counseling and education on budgeting and debt reduction. 800-388-2227 nfcc.org |
|
| Finncial Planning & Debt Management | Consumer Credit.com - Family Credit Management | 800-994-3328 | |
| Gay & Lesbian | Mautner Project, the National Lesbian Health Organization | Direct client services, client navigation programs, online support groups, retreats, workshops, research and advocacy for health issues relating to lesbians with cancer and their families. 866-628-8637 (866-MAUTNER) mautnerproject.org |
|
| General Advice | Colorectal Care Line | Limited finances for transportation reimbursement, temporary lodging, child care and food costs associated with out-of-town treatment. Education, legal counseling, referrals for managed care issues, insurance, financial issues, job discrimination and debt crisis matters. 866-657-8634 colorectalcareline.org |
|
| General Advice | American Society of Clinical Oncology | Managing Cost of Care available online, including tools for talking with doctors about managing the cost of care, summary of costs associated with treatment, list of financial resources. cancer.net |
|
| General Advice | Patient Advocate Foundation | PAF provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Co-payment assistance for patients being treated for breast, colorectal, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemo. English, 866-512-3861, Spanish, 800-516-9256 copays.org or patientadvocate.org Underinsured Directory -search tool for patients with inadequate insurance who need financial assistance Financial assistance resources listed by STATE |
|
| General Advice | Cancer Care Connection | Social Workers (MSW) level offer personal coaching, Internet navigation assistance, useful information and resource connections. 866-266-2008 cancercareconnection.org |
|
| General Advice | Cancer Financial Assistance Coalition | A coalition of organizations helping cancer patients manage their financial challenges. Has search engine for assistance based on type of cancer or type of assistance needed. cancerfac.org |
|
| General Advice | GiveForward.org | Chicago-based organization provides an Internet platform for people in need to solicit donations. 312-957-6113 giveforward.org |
|
| Head | Yul Brynner Head & Neck Cancer Foundation | 843-792-6624 headandneck.org |
|
| Head | International Association of Laryngectomees | Pre- and post-operation visits to laryngeal cancer patients, continuing support and education. 866-425-3678 larynxlink.com |
|
| Head | Support for People with Oral and Head & Neck Cancer (SPOHNC) | Support and information for patients' emotional, psychological and humanistic needs. 800-377-0928 spohnc.org |
|
| Head | Acinic Cell Information Center | A rare salivary gland cancer, comprising approx. 6%-10% of all salivary gland cancers. All salivary gland cancers comprise between 0.3% and 0.9% of all cancers in the United States. The most likely of salivary gland carcinomas to occur bilaterally. Occasionally an even rarer acinic/acinar cell carcinoma of the pancreas, or of the lung (most lung versions are actually metastases). There is new (limited) data to indicate that a certain kind of breast cancer (secretory or juvenile carcinoma) is identical to acinic cell carcinoma. Edgar Stroke edgar@aciniccell.org aciniccell.org |
|
| Head | Support for People with Oral and Head & Neck Cancer | Support and information addressing the emotional and psychological needs of oral and head and neck cancer patients and their families. 800-377-0928, 516-759-5333 spohnc.org |
|
| Head | Laryngectomy Association - NuVoice (ACS) | Laryngectomees who are trained volunteers and who speak well visit a new laryngectomee in the hospital before and after surgery upon medical referral. 800-227-2345, KC area: Dee Etta, 913-432-3277 nu-voice.org |
|
| Hodgkin's Disease | Leukemia & Lymphoma Society | Addresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs. 800-955-4572, Local: 913-262-1515 leukemia-lymphoma.org |
|
| Hodgkin's Disease | Lymphoma Research Foundation Inc. | Educational information and "buddy system" for Hodgkin's and non-Hodgkin's lymphoma patients. Quarterly newsletter. 310-204-7040 lymphoma.org |
|
| Hospice | Choice in Dying | Advocate for individual rights on end-of-life decisions. 800-247-7421 compassionandchoices.org |
|
| Hospice | Kansas City Hospice | 816-363-2600 kansascityhospice.org | |
| Hospice | National Association for Home Care | 202-547-7424 nahc.org | |
| Hospice | National Hospice & Palliative Care Organization (Caring Connections) | Provides phone numbers of local hospices throughout the U.S. Information on choosing home care and hospice. 800-658-8898 caringinfo.org |
|
| Hospice | Growth House | Gateway to resources for life-threatening illness and end-of-life issues. 415-863-3045 growthhouse.org |
|
| Hotline | M.D. Anderson | Patient matching, info about the M.D. Anderson Cancer Center. 800-345-6324 (patient referral: 800-392-1611) |
|
| Hotline | Bloch Cancer Hotline & The Bloch Cancer Foundation | The Cancer Hot Line consists of a group of individuals who have had cancer who are available to talk with newly diagnosed cancer patients, promptly upon diagnosis. We do not make a prognosis or give medical advice. We talk strictly from personal experience, emphasizing prompt treatment, proper treatment, thorough treatment and a positive mental attitude. FREE BOOKS. Survivor Match (we will put you in contact with someone who has survived the same type of cancer). 800-433-0464 blochcancer.org |
|
| Hotline | AMC Cancer Fund | Medical information, resource referrals, emotional support through short-term counseling. 800-525-3777 amc.org |
|
| Hotline | Dave Dravecky's Outreach of Hope | Christian-based prayer support, resource referral and literature. 303-962-7595 endurance.org |
|
| Hotline | Cancer Hope Network | One-on-one support by trained volunteers who have survived cancer. 877-467-3638 cancerhopenetwork.org |
|
| Hotline | Friends for Life Mentoring Network | Based in Kentucky 866-374-3634 friend4life.org |
|
| Hotline | Fourth Angel Network | Affiliated with Th 216-445-8734 4thangel.org |
|
| Hotline | Planet Cancer | An online community for young cancer patients (teens to 30s) and their supporters, similar to Facebook and MySpace. Protected website, lots of response to new pages. planetcancer.org |
|
| Hotline | I Can Cope | ACS-sponsored hospital-based program for patient and family. Learn about disease process, treatment, diagnosis and rehabilitation, exchange ideas and concerns. Emphasis on positive attitudes. 800-ACS-2345 (800-227-2345), Local 816-842-7111 - High Points Division |
|
| Hotline | Hope & Cope (Canada) | Survivor matching, support, patient education, wigs (etc.), quarterly magazine (bilingual, English/French) and more - Jewish General Hospital, Segal Cancer Centre 514-340-8222, Ext. 8255 HopeCope english OR HopeCope FRENCH |
|
| Hotline | Imerman Angels | Peer-to-peer counseling, emphasis on young patients (312) 274-5529 ImermanAngels.org |
|
| Housing & Lodging | Ronald McDonald House | Refuge from the hospital for families of children with cancer. 630-623-7048 rmhc.org |
|
| Housing & Lodging | National Association of Hospital Hospitality Houses | Information on lodging and support available for families receiving medical care away from home. 800-542-9730 nahh.org |
|
| Housing & Lodging | Joe's House | State-by-state lists of accommodations for patients, families and caregivers, also by proximity to hospital. Lodging rates listed; some have online booking links. 877-563-7468 (877- JOESHOU) joeshouse.org |
|
| Housing & Lodging | Hope Lodge (an American Cancer Society program) | Temporary accommodations in some areas for cancer patients during treatment away from home. 800-227-2345 (National), 816-842-6427 (Local) HopeLodge |
|
| In Home Assistance | Faith in Action | A membership organization of local programs that use volunteers from many faiths to shop, cook, drive or just check in on the millions of Americans with long-term health needs. Not available in all areas. 877-575-4932 fianationalnetwork.org |
|
| In Home Assistance | My Pink Planner | Free online service that helps friends coordinate meals and other support for breast cancer patients. Cadie Connors, 816-729-6001 mypinkplanner.com |
|
| In Home Assistance | Stephen Ministries | A Christian, non-denominational, spiritual caregiving program offering confidential weekly one-on-one sessions with trained volunteers in the home, hospital or neutral location. 314-428-2600 stephenministries.org |
|
| In Home Assistance | Cleaning for a Reason | Provides free housecleaning once a month for 4 months to women undergoing chemotherapy. Requires a doctors confirmation of treatment. Currently works with 547 maid services nationwide who provide the cleaning. The application process opens at 12 noon Central Time, Monday through Thursday, and they accept a maximum of 50 applications each day. However, the demand is such that they accept approximately 8 applications a minute once its activated. Therefore, the application process is open for approximately 6 minutes. 877-337-3348 cleaningforareason.org |
|
| Insurance & Legal | Alliance of Claims Assistance Professionals | Helps ensure that clients receive all health insurance benefits to which they are entitled, acts a liaison between patients, insurance companies and health-care providers. 888-394-5163 claims.org |
|
| Insurance & Legal | American Cancer Society | 800-ACS-2345, ask to speak to the insurance specialist. cancer.org | |
| Insurance & Legal | Co-Pay Relief Program | Co-payment assistance for patients being treated for breast, colon, kidney, lung, pancreatic and prostate cancers, lymphomas, sarcomas and secondary issues resulting from chemotherapy. Qualifying patients have health insurance or Medicare Part D benefits. Applicants must meet medical and financial criteria. Most payments go directly to medical providers or pharmaceutical suppliers 866-512-3861 copays.org/ or patientadvocate.org |
|
| Insurance & Legal | Cancer Legal Resource Center | Free and confidential information and resources on cancer-related legal issues. A joint program of Loyola Law School, Los Angeles, and the Disability Rights Legal Center (formerly Western Law Center for Disability Rights). 866-843-2572, 213-736-1455 lls.edu/academics/candp/clrc.html |
|
| Insurance & Legal | State Insurance Commission | Information about coverage for the uninsurable with pre-existing conditions, and about patients' rights. insuranceclaimsconsult.com Ins.Commissioner.htm |
|
| Insurance & Legal | Department of Health & Human Services Inspector General Hotline | Answers complaints regarding fraud, overcharging or other abuses related to Medicare or Medicaid. Provides help with entitlements and benefits, and information on insurance and community resources. 800-447-8477 oig.hhs.gov |
|
| Insurance & Legal | Patient Advocate Foundation | Information on managed-care terminology and policy issues that may affect coverage; legal intervention services; and counseling to resolve job and insurance problems. 800-532-5274 patientadvocate.org |
|
| Insurance & Legal | CancerCare Inc. | Counseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services provided in person, on phone and online. 800-813-4673 (800-813-HOPE) cancercare.org |
|
| Insurance & Legal | Cancervive | cancervive@aol.com cancervive.org | |
| Insurance & Legal | State Cancer Legislative Database | State-by-state information from the National Cancer Institute on legislation relating to breast, cervical, colorectal, ovarian, prostate, skin, testicular and uterine cancer, access to state-of-the-art treatment, cancer registries, genetics, and tobacco. scld-nci.net/index.cfml |
|
| Insurance & Legal | National Coalition for Cancer Survivorship | 888-937-6227 (888-YES-NCCS) canceradvocacy.org | |
| International Medical Care | Medical Tourism Association | 561-791-2000 medicaltourismassociation.com | |
| Kansas City Area | R. A. Bloch Cancer Foundation & Bloch Cancer Hotline | The Cancer Hot Line consists of a group of individuals who have had cancer who are available to talk with newly diagnosed cancer patients, promptly upon diagnosis. We do not make a prognosis or give medical advice. We talk strictly from personal experience, emphasizing prompt treatment, proper treatment, thorough treatment and a positive mental attitude. FREE BOOKS. Survivor Match (we will put you in contact with someone who has survived the same type of cancer). 800-433-0464 blochcancer.org |
|
| Kansas City Area Support & Advocacy Groups | Cancer Action | 913-321-8880 (Wyandotte County KS), 816-350-8881 (Independence MO), 913-642-8885 (Johnson County KS) canceractionkc.org | |
| Kansas City Area Support & Advocacy Groups | Turning Point: The Center for Hope & Healing | 913-383-8700 turningpointkc.org | |
| Kansas City Area Support & Advocacy Groups | Vicki Walsh Fund | Ovarian cancer information thevickiwelshfund.org/ |
|
| Kansas City Area Support & Advocacy Groups | Touched by Cancer Foundation | Therapeutic sessions provided through their Wellness Center, Support Groups, Community Education opportunities and classes in Yoga, Tai Chi, Pilates, Art, and several topics requested by participants in their programs 913-381-8488 touchedbycancerfoundation.org |
|
| Kidney | American Urological Association Foundation | Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs. 800-242-2383 urologyhealth.org auafoundation.org |
|
| Kidney | Society of Urologic Oncology | Website has an online member referral service. 847-264-5901 societyofurologiconcology.org |
|
| Kidney | Kidney Cancer Association | Written materials, telephone referrals to oncologists and urological surgeons. Website has listings of clinical trials. Sponsors a national patient convention yearly and patient information meetings in 35 major cities. 800-850-9132 nkca.org curekidneycancer.org kidneycancer.org |
|
| Legal Advice & Insurance Advocacy | Patient Services Incorporated | Helps locate suitable health insurance coverage and access ways to meet expensive co-payments 800-366-7741 https://www.patientservicesinc.org/ |
|
| Legal Advice & Insurance Advocacy | Veterans Benefits | 877-222-8387 (877-222-VETS) va.gov/vbs/health | |
| Legal Advice & Insurance Advocacy | Medicare Rights Center | National hotline, free counseling on Medicare questions or problems, local programs in New York City/Westchester County 800-333-4114 medicarerights.org |
|
| Legal Advice & Insurance Advocacy | Social Security Administration | ssa.gov | |
| Legal Advice & Insurance Advocacy | Medicare & Medicaid | Centers for Medicare & Medicaid Services 800-MEDICARE (800-633-4227) medicare.gov |
|
| Legal Advice & Insurance Advocacy | State Children's Health Insurance Program | Federal-state partnership offers low-cost or free coverage to uninsured children of low-wage, working parents. 877-543-7669 insurekidsnow.gov |
|
| Legal Advice & Insurance Advocacy | Medicaid | cms.hhs.gov/medicaidgeninfo | |
| Leukemia | CLL Action Plan | CLL Action Plan is a patient-focused Web site dedicated to helping individuals with CLL manage their condition at various stages. Created by Bayer Health Care Pharmaceuticals in partnership with CLL experts. Patients must register online to use features of the website. cllactionplan.com |
|
| Leukemia | Leukemia & Lymphoma Society | Addresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs. 800-955-4572, Local: 913-262-1515 leukemia-lymphoma.org |
|
| Leukemia | National Children's Leukemia Foundation | Comprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care. 800-448-3467, In NY: 718-251-1223 leukemiafoundation.org |
|
| Liver | American Liver Foundation | General information, information on local chapters, but most of the support groups are for hepatitis and liver transplant patients. 800-465-4837, (212) 668-1000 liverfoundation.org |
|
| Lung | Lung HelpLine | Registered nurses and respiratory therapists provide answers about lung disease related issues including respiratory therapy, respiratory home health care, medication counseling, physician referral (in upper Midwest) and more. 800-548-8252 lunghelpline.org |
|
| Lung | Lung Cancer Circle of Hope | New Jersey-based group developing advocacy and regional educational programs. 732-363-4426 lungcancercircleofhope.org |
|
| Lung | Lung Cancer Online Foundation | Funds research and provides information to patients and families via website. lungcanceronline.org |
|
| Lung | Lung Cancer Caring Ambassadors Program | Provides information and encouragement to people with lung cancer and their loved ones. lungcancercap.org |
|
| Lung | American Lung Association | Informational packets, answers to medical questions. 800-586-4872, Local 816-842-5242 lungusa.org |
|
| Lung | Lung Cancer Alliance | Advocacy for patients, survivors, families and caregivers. Patient-survivor "buddy" matches, quarterly newsletter, information on support groups, and online support group. 800-298-2436 lungcanceralliance.org |
|
| Lung | Lung Love Link | An online community linking lung cancer patients to resources and support in the lung cancer community. Sponsored by the Lung Cancer Alliance. lunglovelink.org |
|
| Lung | LungCancer.org | A website operated by CancerCare specifically for lung cancer, with links to information and CancerCare support. 877-646-5864 lungcancer.org |
|
| Lymphedema | Therapy Plus (Shawnee Mission Med Ctr) | 913-676-2444 or 913-676-6832 | |
| Lymphedema | National Lymphedema Network | Counseling and referrals to treatment centers 800-541-3259 - Hotline lymphnet.org |
|
| Lymphoma | Leukemia & Lymphoma Society | Addresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs. 800-955-4572, Local: 913-262-1515 leukemia-lymphoma.org |
|
| Lymphoma | Lymphoma Research Foundation Inc. | Information tailored to patient's diagnosis, "buddy system" for Hodgkin's and non-Hodgkin's lymphoma patients. Quarterly newsletter. lymphoma.org |
|
| Lymphoma | Mantle Cell Lymphoma Consortium | Core information for patients, and a searchable database of relevant clinical trials. 800-500-9976 mantlecelllymphoma.org |
|
| Melanoma | Northern California Melanoma Center, St. Mary's Medical Center | Review of new patients' cases by a Consulting Panel 415-750-5660 melanomacenter.com |
|
| Melanoma | Melanoma Patients Information Page | Has bulletin board, chat room, e-mail links and anecdotal stories about melanoma patients. mpip.org |
|
| Melanoma | Melanoma Research Foundation | Patient information and an online chat room. 800-673-1290 melanoma.org |
|
| Melanoma | Melanoma Care Coalition | For medical professionals, a list by region of hospitals with melanoma centers. No evaluation. 845-398-5100 melanomacare.org |
|
| Metastatic Cancer | MetaCancer Foundation (with Wellness Community) | Resources and support for metastatic cancer survivors and their caregivers. Those with very different types of metastatic cancer acknowledge the common psychological and emotional realities they face. info@metacancer.org 760-231-9636 metacancer.org |
|
| Metastatic Cancer | Jack & Jill Late Stage Cancer Foundation | Provides "dream Factory memory opportunities for children who have a Mom or Dad with late-stage, limited life expectancy cancer. 404-279-5211 jajf.org |
|
| Multilingual Services | ACS access to ATT language line | Option 9 for Spanish - Ask to speak to someone in the language of choice. 800-227-2345 |
|
| Multilingual Services | Centers for Disease Control, Spanish-language cancer information | cdc.gov/spanish/cancer | |
| Multilingual Services | ASCO Patient Guides in Spanish | Primarily for those of Asian and Pacific Islander descent. Offers linking connections with survivors and resources to services and multi-lingual cancer materials 415-954-9988 plwc.org |
|
| Multilingual Services | California Chinese Unit, American Cancer Society | 888-566-6222, 510-797-0600 acs-nccu.org | |
| Multiple Myeloma | Leukemia & Lymphoma Society | Addresses four diseases: leukemia, lymphoma, Hodgkin's and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs. 800-955-4572, Local: 913-262-1515 leukemia-lymphoma.org |
|
| Multiple Myeloma | Multiple Myeloma Research Foundation | Supports research grants and professional symposiums, publishes quarterly newsletter, conducts seminars, and provides referrals and info packets. 203-972-1250 multiplemyeloma.org |
|
| Multiple Myeloma | International Myeloma Foundation | Hotline, information packets, quarterly newsletter, seminars, workshops. 800-452-2873, 818-487-7455 myeloma.org |
|
| Myelodysplastic Syndrome | Myelodysplastic Syndromes Center Foundation | Its international information network provides patients with referrals to treatment centers knowledgeable about MDS, contact names for available clinical trials, sharing of new research and treatment options between physicians, educational support to doctors and patients, and patient advocacy groups. 800-MDS-0839 mds-foundation.org |
|
| Neck | International Association of Laryngectomees | Pre- and post-operation visits to laryngeal cancer patients, continuing support and education. 866-425-3678 larynxlink.com |
|
| Neck | Laryngectomy Association - NuVoice (ACS) | Laryngectomees who are trained volunteers and who speak well visit a new laryngectomee in the hospital before and after surgery upon medical referral. 800-227-2345, KC area: Dee Etta, 913-432-3277 nu-voice.org |
|
| Neck | Acinic Cell Information Center | A rare salivary gland cancer, comprising approx. 6%-10% of all salivary gland cancers. All salivary gland cancers comprise between 0.3% and 0.9% of all cancers in the United States. The most likely of salivary gland carcinomas to occur bilaterally. Occasionally an even rarer acinic/acinar cell carcinoma of the pancreas, or of the lung (most lung versions are actually metastases). There is new (limited) data to indicate that a certain kind of breast cancer (secretory or juvenile carcinoma) is identical to acinic cell carcinoma. Edgar Stroke edgar@aciniccell.org aciniccell.org |
|
| Neck | Yul Brynner Head & Neck Cancer Foundation | 843-792-6624 headandneck.org |
|
| Neck | Support for People with Oral and Head & Neck Cancer | Support and information addressing the emotional and psychological needs of oral and head and neck cancer patients and their families. 800-377-0928, 516-759-5333 spohnc.org |
|
| Neck | Support for People with Oral and Head & Neck Cancer (SPOHNC) | Support and information for patients' emotional, psychological and humanistic needs. 800-377-0928 spohnc.org |
|
| Neuroendocrine | Carcinoid.org | Carcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor carcinoid.org |
|
| Neuroendocrine | CnetsCanada.org | Carcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor cnetscanada.org |
|
| Neuroendocrine | Northern California Carcinoid Fighters | Carcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor NCCF.org |
|
| Neuroendocrine | Net Islet Cell Yahoo! Group | Pancreatic (PNET) Commonly referred to as Pancreatic Neuroendocrine and not to be confused with cancer of the exocrine pancreas groups.yahoo.com/group/NET_ISLETCELL/ |
|
| Neuroendocrine | HeartLandCarcinoids.org | Carcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor heartlandcarcinoids.org |
|
| Neuroendocrine | ACOR.org | Carcinoid (CNET) - Commonly referred to as Carcinoid Neuroendocrine Tumor ACOR.org |
|
| Neuropathy | The Neuropathy Association | General info on neuropathy from various causes, plus info on support groups. 212-692-0662 neuropathy.org |
|
| Non-Medical Assistance | CancerCare | Breast cancer - AVONCares: Limited financial assistance for home care, childcare and transportation. A program in partnership with the Avon Foundation. Linking A.R.M.S.: Limited financial assistance for hormonal and oral chemotherapy, pain and anti-nausea medication, lymphedema supplies and durable medical equipment. A program in partnership with Susan G. Komen for the Cure. Children ages 18 and under: Limited financial assistance for home care, child care, transportation, medication and co-pays. All other cancers: Limited financial assistance for home care, childcare, transportation, and pain medication. Touching Hearts program funded by the Mary Kay Ash Charitable Foundation. San Diego area assistance funded by the WebMD Foundation. 800-813-4673 (800-813-HOPE) cancercare.org |
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| Non-Medical Assistance | Surviving and Moving Forward: The SAM Fund for Young Adult Survivors of Cancer | Grants and scholarships for survivors ages 17-35 to help them pursue educational or professional goals. 617-938-3484 thesamfund.org |
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| Non-Medical Assistance | Caregivers Marketplace | Cash-back (up to $1 per item) program for eligible products not typically covered by insurance or Medicare, including Ensure and Depends. Enrollment, list of products online. 800-888-0889 caregiversmarketplace.com |
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| Non-Medical Assistance | Ulman Cancer Fund for Young Adults: National College Scholarship Program | Offers three scholarships for young adult cancer survivors diagnosed after the age of 15 and are currently under the age of 35. In addition, the organization offers scholarships for young adults who have a parent living with a cancer diagnosis, or who have lost a parent to cancer. 888-393-FUND (3863) ulmanfund.org |
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| Non-Medical Assistance | Cancer Survivors Fund | Provides college scholarships and financial assistance for prosthetic limbs to young adult cancer survivors. See website for information on eligibility and application. 281-437-7142 cancersurvivorsfund.org |
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| Non-Medical Assistance | Catholic Charities - Brenda Mehling Cancer Fund | Financial assistance for patients ages 18-40 to cover co-pays, rent/mortgage, transportation, car insurance, repairs and groceries. Apply through website. 661-310-7940 bmcf.net |
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| Non-Medical Assistance | NeighborWorks America | Information on resources for people having difficulty paying a mortgage or know they will have difficulty in the near future. 202-220-2300 foreclosure-help.asp |
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| Oral | Support for People with Oral and Head & Neck Cancer (SPOHNC) | Support and information for patients' emotional, psychological and humanistic needs. 800-377-0928 spohnc.org |
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| Oral | Yul Brynner Head & Neck Cancer Foundation | 843-792-6624 headandneck.org |
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| Oral | Web Whispers | Support for survivors of larynx and throat cancers. webwhispers.org |
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| Oral | Oral Cancer Foundation | Prevention, education, research advocacy and support activities. 949-646-8000 oralcancerfoundation.org |
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| Ostomy | United Ostomy Association | Education, information, support and advocacy for intestinal or urinary diversion patients. 800-826-0826 uoa.org |
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| Ostomy | Crohn's & Colitis Foundation of America | No cancer connection, but chapters nationwide where ostomy patients can get support for that aspect. 800-932-2423 ccfa.org |
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| Ostomy | ConvaTec Connection | 800-422-8811 convatec.com | |
| Ovarian | Ovarian Cancer National Alliance | Consumer-led umbrella group uniting cancer survivors, women's health activists and healthcare professionals in a coordinated effort to focus national attention on ovarian cancer. 866-399-6262 ovariancancer.org |
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| Ovarian | Ovarian Cancer Research Fund | Advances research by underwriting investigations to find techniques for early detection and to aid in development of new therapies. Raises awareness through educational outreach programs, awareness projects and video & resource materials. 800-873-9569 ocrf.org |
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| Ovarian | The Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF) | Awareness for preventing, detecting and treating gynecological cancers and supports research and training. 800-444-4441 foundationforwomenscancer.org/ wcn.org |
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| Ovarian | FORCE (Facing Our Risk of Cancer Empowered) | Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer. Also has peer-to-peer matching service. 866-824-7475 (RISK) facingourrisk.org |
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| Ovarian | Conversations: The International Ovarian Cancer Connection | Free newsletter, matching service 806-355-2565 ovcanews@aol.com ovarian-news.org |
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| Ovarian | Support Connection | Breast & ovarian hotline, teleconference monthly, 8 p.m. Eastern on the 2nd Wednesday. 800-532-4290 supportconnection.org |
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| Ovarian | Gilda Radner Familial Family Registry | Information about risk factors, warning signs and diagnostic tests, plus a family registry. 800-682-7426 (800-OVARIAN) ovariancancer.com |
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| Ovarian | In My Sister's Care | A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations 212-802-7686, 202-607-1883 inmysisterscare.org |
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| Ovarian | National Ovarian Cancer Coalition | Brochures about symptoms and treatments for newly diagnosed. Website has a chat room and "Ask the Doctor" section. Education seminars for healthcare providers and forums for the public. Also collects data for research. 888-682-7426 (888-OVARIAN) ovarian.org |
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| Pain | Alliance of State Pain Initiatives (WI) | Based in the University of Wisconsin School of Medicine & Public Health. A network of state-based Pain Initiative organizations working to remove barriers that impede pain relief through education, advocacy and institutional improvement. State initiatives include nurses, physicians, pharmacists, social workers, psychologists, patient advocates, and representatives of clergy, higher education, and government dedicated to improving the care of persons with pain. 608-265-4013 trc.wisc.edu/ |
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| Pancreatic | Lustgarten Foundation for Pancreatic Cancer Research | Patient and Caregiver Education (PACE) program helps link patients and caregivers to community-based services, provides a patient information booklet and operates a clinical trial matching service. Based in Bethpage, NY. 866-789-1000 lustgartenfoundation.org |
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| Pancreatic | Michael Rolfe Pancreatic Cancer Foundation | Chicago-area support groups 312-609-9910 rolfefoundation.org |
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| Pancreatic | Pancreatic Cancer Action Network (PANCAN) | Information and peer-to-peer matching; research, patient support, community outreach and advocacy. PALS program provides patient and liaison services, diagnosis, treatment option and support resources. 877-272-6226 pancan.org |
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| Pancreatic | Pancreatic Cancer-Awareness Matters | Resources, DVD and book on pancreatic cancer Sherry Ainsworth 816-960-9100 (the Lockton Companies), ask for Sherry Ainsworth cancerbattleplan.com |
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| Pancreatic | Pancreatica | In-depth selection of latest medical information on pancreatic cancer, reviewed by a board of medical advisors. Also, a comprehensive list of clinical trials. 831-658-0600, 800-525-3777 Information & Counseling Line at U of Colorado Cancer Center pancreatica.org |
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| Penile | Society of Urologic Oncology | Website has an online member referral service 847-264-5901 societyofurologiconcology.org |
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| Penis | Society of Urologic Oncology | Website has an online member referral service 847-264-5901 societyofurologiconcology.org |
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| Peritoneal | PMP Pals | The PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter 831-424-4545 pmppals@yahoo.com pmppals.org |
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| Pregnancy | Pregnant with Cancer Network | Information and matching service (phone or email) 800-743-4471 hopefortwo.org |
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| Prescription Assistance | MedbankUS | Provides prescription drug discount cards that give patients with little or no prescription drug coverage 15% to 40% discounts on name-brand and generic prescription drugs. 877-435-7755 medbankus.org |
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| Prescription Assistance | Together Rx Access | Qualifying patients receive discounts of 25% to 40% on brand name and generic prescriptions. 800-444-4106 togetherrxaccess.com |
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| Prescription Assistance | Ohio Golden Buckeye | 800-301-6446 | |
| Prescription Assistance | West Virginia Golden Mountaineer Card | 877-987-3646 | |
| Prescription Assistance | Maryland Rx Discount | 800-226-2142 | |
| Prescription Assistance | Maine Rx Plus | 866- 796-2463 | |
| Prescription Assistance | Iowa Priority Rx Savings | 866-282-5817 | |
| Prescription Assistance | Washington RxWashington Card | 800-227-5255 | |
| Prescription Assistance | Partnership for Prescription Assistance | 800-477-2669 (800-4PPA-NOW) pparx.org | |
| Prescription Assistance | National Organization for Rare Disorders (NORD) | Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org/programs/medication 215-625-9609 rarediseases.org |
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| Prescription Assistance | Michigan MIRx Rx Savings | 866-755-6479 | |
| Prescription Assistance | National Organization of Rare Disorders (NORD) - Needy Meds | Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For current list, visit rarediseases.org/programs/medication 212-625-9609 rarediseases.org |
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| Prescription Assistance | New Hampshire Rx Drug Discount Program for Seniors | 800-351-1888 | |
| Prescription Assistance | Pharmaceutical companies | Some offer patient assistance programs for costly medicines: Get information from physician or medical social worker |
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| Prescription Assistance | Florida Rx Discount Program | 888-419-3456 | |
| Prescription Assistance | California Discount Rx Program | 800-434-0222 | |
| Prescription Assistance | Breast Cancer Action | Breast Cancer Action offers links to info on assistance for meds used to treat breast cancer, including varying eligibilty requirements, enrollment processes, and duration of assistance. bcaction.org patient assistance programs |
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| Prescription Assistance | Arizona CoppeRxCard | 888-227-8315 | |
| Prostate | Us Too International | Education and emotional support through a network of groups and monthly newsletter. 800-808-7866 ustoo.org |
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| Prostate | Prostate Cancer Research Institute | The Institute's Help Line, staffed by prostate cancer survivors and supporters, helps the patient understand his diagnosis and his treatment options with information from a variety of sources, including the Institute's medical advisory board. 800-641-7274 prostate-cancer.org pcri.org |
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| Prostate | Prostate Cancer Foundation | California-based foundation provides information online and in free publications, including "Nutrition and Prostate Cancer." 800-757-2873 prostatecancerfoundation.org |
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| Prostate | National Prostate Cancer Coalition | Awareness, outreach & advocacy. 888-245-9455 fightprostatecancer.org |
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| Prostate | The Prostate Net | Its goal is to provide credible and actionable information, using a synergistic blend of cancer survivors, renowned cancer clinicians and researchers and corporate supporters that will enable patients, their families and health professionals to partner in making the choices to assure the best chance for cure and retention of the desired quality-of-life. Website content is also available in Spanish. 888-477-6763, 201-342-3202 prostatenet.org |
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| Prostate | Patient Advocates for Advanced Cancer Treatments | Patient package and quarterly newsletter, an association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer. Counselor, talk one on one to discuss questions and concerns. Phone hours: 10 am to 3 pm EST 616-453-1477 or e-mailpaact@paactusa.org. paactusa.org |
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| Prostate | American Urological Association Foundation | Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs, including the Prostate Cancer Network. 800-242-2383 urologyhealth.org auafoundation.org |
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| Prostate | Society of Urologic Oncology | Website has an online member referral service 847-264-5901 societyofurologiconcology.org |
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| Prostate | Man to Man | American Cancer Society program - Publishes a quarterly newsletter 800-227-2345 |
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| Prosthesis | PJ Jordan | Thorough Support for People with Oral, Head and Neck Cancer - A source for information on nose prosthesis pjjordan@mcvh-vcu.edu (w)804-828-4893, 7:30-3 (lunch 1-2pm) |
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| Radiation | RT Answers - Answers to Your Radiation Therapy Questions from the American Society for Radiation Oncology | Info about radiation treatments and side effects, search engine to find radiation oncologists. 800-962-7876 rtanswers.org or ASTRO.org |
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| Radiation | American Brachytherapy Society | A resource for information on seed implant radiation 703-234-4078 americanbrachytherapy.org |
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| Radiation | American Society for Radiation Oncology | Information on radiation therapy treatments, including brochures specific to cancer types, and a tool to find local radiation oncologists astro.org/ |
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| Radiation | Radiology Info | Information about diagnostic tools and therapies from the American College of Radiology and the Radiological Society of North America. radiologyinfo.org |
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| Rare Cancers | National Organization for Rare Disorders (NORD) | Information including symptoms and treatment for many rare disorders, matches by mail. Some prescription assistance for uninsured and underinsured, and co-payment assistance for some cancer types. For more information on Patient Assistance Programs visit: rarediseases.org/programs/medication 800-999-6673 - Voice mail only, or 203-744-0100 rarediseases.org |
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| Rectal | Colon Cancer Alliance | Treatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer. 877-422-2030, 202-628-0123 ccalliance.org |
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| Rectal | C3: Colorectal Cancer Coalition | Advocacy group's site includes a guide to diagnosis and treatment options and a range of resources. 877-427-2111, 703-548-1225 fightcolorectalcancer.org |
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| Regional Assistance - | Vincent P. Gurucharri MD Foundation - Missouri only, limited counties | Financial assistance to residents Audraine, Booke, Callaway, Cole, Cooper, Howard, Maniteau and Randolph counties with limited financial resources who are receiving cancer treatment. 573-443-8773 docg.org |
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| Regional Assistance - Florida | L.I.G.H.T. of Southwest Florida - Florida only , Lee & Collier counties | Assists insured cancer patients with co-pays for medical care and medicines. Patients must agree to a credit check to verify financial need. Payments go directly to physicians, medical facilities and prescription providers. lightswfl.org |
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| Regional Assistance - Florida | Gulfcoast Oncology Foundation - Florida only, Tampa Bay area | Financial assistance for non-medical expenses during cancer treatment 727-821-0017 Ext. 2264 >gulfcoastoncologyfoundation.com/ |
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| Regional Assistance - Indiana & Kentucky | Michael Quinlan Brain Tumor Foundation - Indiana and Kentucky only | Educational, emotional, financial and spiritual services for patients in Indiana and Kentucky. 1815 Arboro Pl, Louisville, KY 40220 | phone: 502-896-1701 |
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| Regional Assistance - Kansas City | Northland CARE/MetroCARE | Northland CARE/MetroCARE, a primary and specialty care referral network linking safety-net patients with charitable physicians in the community. Northland CARE/MetroCARE is a community partnership to improve access to medical care for low-income, uninsured residents of Jackson, Clay and Platte Counties. Northland CARE/MetroCARE combines care provided by volunteer Northland primary care physicians and safety net clinics with donated specialty care in a coordinated program. Northland CARE/MetroCARE patients will be Jackson, Clay or Platte County residents who are low income, uninsured, ineligible for governmental healthcare programs, and have previously been financially screened. 816-531-8432 or hotline 816-880-6700 |
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| Regional Assistance - Kansas City | Wy/Jo Care | Wy/Jo Care is a community partnership to improve access to specialty health care for low-income, uninsured residents of Wyandotte and Johnson Counties. It combines care provided in primary care safety net clinics with donated specialty care in a coordinated referral program led by the Medical Society of Johnson and Wyandotte Counties. Patients must meet the following criteria to qualify for Wy/Jo Care:
phone: 913-403-0544 fax: 913-403-1423 email: wyjocare@msjwc.org |
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| Regional Assistance - Kansas City | KC Medicine Cabinet | Short-term medical assistance, dentures, glasses, medicines, hearing aids, etc. Call 211 (United Way info line), ask for Bob Trin. |
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| Regional Assistance - Kansas City | Helping Hand Foundation | Very limited assistance to KC area residents with proven, verified need. A patient advocate must make the request - not the patient 913-341-5411 helpingfoundation.org |
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| Regional Assistance - Minnesota | Angel Foundation - Minnesota only | Grants for non-medical needs to adult patients referred by doctor or hospital social worker, educational programs for families, summer camp for children of cancer patients 952-830-0519 mnangel.org |
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| Regional Assistance - New York | Cancer Advocacy Project, New York City Bar Fund - New York City Only | Bilingual advice and referrals on employment law, health law and will preparation. 212-382-4785 abcny.org |
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| Regional Assistance - North Texas | Bridge Breast Network - North Texas only | The Bridge Breast Network saves lives by linking low income, uninsured women in the 16-county region of North Texas to diagnostic and treatment services for breast cancer. 877-258-1396 (or 214-821-3820) bridgebreast.org |
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| Relaxation Meditation | Healthjourneys | They offer a variety of videos, cassettes, CDs, software and books to promote relaxation, wellness and healing that is related specifically to cancer and the effects of chemotherapy and radiation. Products include resources on guided imagery, meditation and self-care. 800-800-8661 healthjourneys.com |
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| Relaxation Meditation | Care Trust Publications | They offer a variety of resources for self-care including a CD and audio tape for stress reduction and meditation designed for caregivers. 800-565-1533 comfortofhome.com |
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| Relaxation Meditation | Mind Jingles | A CD of six songs for patients and caregivers designed to promote positive attitudes and a sense of well-being. The songs are repetitions of words and phrases on the topics of healing, love, beauty, peace, energy and thankfulness. 866-502-1030 musicalnotes.com |
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| Relaxation Meditation | Center for Mindfulness in Medicine, Health Care and Society at University of Massachusetts Medical School | They have information on "mindfulness based stress reduction" - a program to promote relaxation and well-being. Resources on stress reduction through meditation, guided imagery and relaxation techniques are available. Topics include "Using your mind and body to face stress, pain and illness." 508-856-2656 umassmed.edu/cfm |
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| Research | Cancer Research Institute | Supports research into immunological treatment, control & prevention. 800-992-2623, 212-688-7515 cancerresearch.org |
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| Sarcoma | The Alliance Against Alveolar Soft Part Sarcoma | NORD-affiliated organization with patient registry and information on current treatments and clinical trials. 718-523-7752, 301-253-0854 alveolarspsarcoma.net |
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| Sarcoma | Sarcoma.net | News and information about sarcoma clinical trials, educational materials, request online consult with Dr. George Demetri, online host. 617-632-5204 sarcoma.net |
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| Sarcoma | Sarcoma Alliance | Guidance, education and support to adult and child sarcoma patients and families, list of sarcoma-specialized cancer centers, discussion board, chat room. 415-381-7236 sarcomaalliance.org |
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| Sarcoma | Sarcoma Foundation of America | Patient resources, fund-raiser and advocate for increased research. 301-253-8687 curesarcoma.org |
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| Sarcoma | The Liddy Shriver Sarcoma Initiative | Support and information, electronic newsletter, fund-raising for research. Founded by Bruce & Bev Shriver, whose daughter, 37, died of Ewing's sarcoma. 914-762-3251 liddyshriversarcomainitiative.org |
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| Side Effects | Skin care during radiation | One of our volunteers used this treatment her hospital recommended with good results. Use a mild soap (Tone or Dove) and use cotton towels. In order to minimize skin reaction, use salt-water soaks - mix 1 tsp. table salt in 1 quart warm water, saturate a cotton washcloth in the solution and place over treated area for 10 to 15 minutes. Apply whatever lotion doctor recommends. Start soaks after first week and do twice a day after the 3rd or 4th week. |
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| Side Effects | Oncology Nursing Society - Cancer Fatigue | Interactive website from the Oncology Nursing Society. cancersymptoms.org |
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| Side Effects | Shop Well With You | Customized clothing tips arranged by cancer-related treatments and side-effects; a directory of cancer-specific products such as swimsuits and head coverings, and where to find them; guidance on how to use clothing and accessories to maintain a positive body-image during and after treatment; and articles and books focused on body-image, clothing, cancer, and wellness. (800) 799-6790, 212-226-0466 shopwellwithyou.org |
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| Side Effects | Look Good-Feel Better | People undergoing treatment develop skills to improve their appearance. ACS program: 800-227-2345 |
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| Skin | The Skin Cancer Foundation | Public awareness, supports research, provides educational materials. 800-754-6490 skincancer.org |
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| Statistics | Centers for Disease Control | Statistical information by cancer type and overall, also available in Spanish. Also, an online link to a very interesting Global Cancer Atlas Online that shows where some types are more prevalent than others. 800-CDC-INFO (232-4636) cdc.gov/cancer |
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| Support | ACOR | Online support group offers information and opportunity to converse with or receive email from other people who have the same type of cancer. acor.org |
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| Support | American Cancer Society | 800-227-2345 (800-ACS-2345) cancer.org | |
| Support | American Society of Clinical Oncology | American Society of Clinical Oncologists' patient website providing oncologist-approved information to help people cope and make decisions about their healthcare, monthly Q&A with doctors. 888-651-3038 cancer.net |
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| Support | Alpha Cancer Information Resource | Coalition of National Cancer Cooperative Groups, providing access to cancer-related health information, allows visitor to interact directly with leading specialists in the field. alphacancer.com |
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| Support | R. A. Bloch Cancer Foundation & Bloch Cancer Hotline | The Cancer Hot Line consists of a group of individuals who have had cancer who are available to talk with newly diagnosed cancer patients, promptly upon diagnosis. We do not make a prognosis or give medical advice. We talk strictly from personal experience, emphasizing prompt treatment, proper treatment, thorough treatment and a positive mental attitude. FREE BOOKS. Survivor Match (we will put you in contact with someone who has survived the same type of cancer). 800-433-0464 blochcancer.org |
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| Support | CancerCare | Counseling, support groups, restricted financial assistance, education and referrals to patients and loved ones. Services in person, on phone and online. 800-813-4673 (800-813-HOPE), 212-712-8400 cancercare.org |
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| Support | Cancer Information and Counseling Line (CICL) University of Colorado Cancer Center | CICL is a toll-free, national service at the University of Colorado Cancer Center that provides evidenced-based couseling for the whole person. Provide and translate up-to-date, comprehensive medical information and offer brief, personalized and professional couseling when callers need it most. Counselors are highly trained, master's-level psychosocial professionals. A Free telephone counseling service designed to help all people who are affected by cancer E-mail: cicl@ucdenver.edu Cancer Information & Counseling Line Monday-Friday 8:30 a.m - 5 p.m. MT CICL |
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| Support | National Cancer Survivors Day Foundation | Free kits for planning celebration on the first Sunday of June. 615-794-3006 ncsdf.org |
|
| Support | Lance Armstrong Foundation - LiveSTRONG SurvivorCare | Caseworker available for one-on-one counseling and referrals to local resources, help addressing financial and insurance concerns, and clinical trials matching to new treatments in development. Information and tools to "live strong," following LAF philosophy that unity is strength, knowledge is power and attitude is everything in the battle against cancer. 866-467-7205 livestrong.org |
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| Support | Cancer Support Community | Gilda's Club Worldwide and the Wellness Community merged in May 2009. Build social and emotional support as a supplement to medical care in a free, nonresidential, homelike setting. All kinds and stages of cancer, families and friends. Locations in U.S. and Canada. Support, education and hope for patients, families. 888-445-3248 (888-GILDA-4-U) gildasclub.org |
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| Support | Cancer Answers | 800-456-7121 | |
| Support | National Coalition for Cancer Survivorship | Survivor-led organization advocating quality care. 877-622-7937 canceradvocacy.org |
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| Support | Survivorship A-Z | Comprehensive information advocating quality care survivorshipatoz.org/cancer |
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| Support | National Cancer Institute | Access to PDQ (Physician Data Query) Information on types of cancer 800-422-6237 (800-4-CANCER) cancer.gov |
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| Support | Cancer News on the Net | cancernews.com | |
| Testicular | Lance Armstrong Foundation | 866-467-7205, laf.org livestrong.org |
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| Testicular | Society of Urologic Oncology | Website has an online member referral service 847-264-5901 societyofurologiconcology.org |
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| Thyroid | American Thyroid Association | Website lists members by state or country, with subspecialties. 800-849-7643, 703-998-8890 thyroid.org |
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| Thyroid | ThyCa: Thyroid Cancer Survivors Association | Support, education and communication for survivors, families and friends. Raises research funding and holds an annual conference. Website has downloadable low-iodine cookbook and newsletter. 877-588-7904 thyca.org |
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| Thyroid | Anaplastic Thyroid Cancer specialist | He treated Bloch Cancer Hotline HV Bob Legler Paul Ladenson, Kimmel Cancer Center, Johns Hopkins University 410-955-3663 |
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| Transportation | National Patient Travel Center | Free referral for patients needing airline transportation to distant specialized treatment facilities. 800-296-1217 patienttravel.org |
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| Transportation | Air Compassion for Veterans | Affiliated with National Patient Travel Center - medically related air transport services to troops, veterans their immediate family members. 888-662-6794 AirCompassionForVeterans.org |
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| Transportation | Air Compassion America | Affiliated with National Patient Travel Center - patient travel requires air ambulance and medical monitoring en route. 866-270-9198 AirCompassionAmerica.org |
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| Transportation | Angel Flight America | Free air transportation for people in need to specialized healthcare facilities or distant destinations due to a family, community or national crisis. 888-426-2643 (888-4-AN-ANGEL) angelflightwest.org |
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| Transportation | Angel Bus | Affiliated with National Patient Travel Center - nonprofit corporation dedicated to providing compassionate, non-emergency long-distance ground transportation using motor coaches and their volunteer drivers as well as commercial bus service. 757-333-0084 angel-bus.org |
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| Transportation | Corporate Angel Network | Affiliated with National Patient Travel Center - Arrange free air transportation for cancer patients and bone marrow donors to/from cancer treatment centers nationwide. No financial requirements or limits on number of flights. Patients must be able to walk/travel without life support. 866-328-1313 corpangelnetwork.org |
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| Transportation | Stretcher Patient Transport | Affiliated with National Patient Travel Center - a federally-approved stretcher equipped Beech 36 aircraft (the Bonanza) to transport patients who must be lying down en route but do not require any medical attention en route. The Bonanza is based out of Manassas, Virginia and serves the Mid-Atlantic States. The service is provided free of charge to eligible patients. 800-296-3797 |
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| Treatment Information | FDA Cancer Liaison Program | Information about the FDA drug approval process, clinical trials, and access to investigational therapies. 888-463-6332 Cancer Liaison Program |
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| Treatment Information | Cancer Research Institute | CRI Helpbook provides information on how to talk to doctor when diagnosed, information about treatments and clinical trials, and a resource directory. 800-992-2623 canceresearch.org |
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| Treatment Information | National Library of Medicine | Access to the National Library of Medicine for literature searches. Access to Medline to search for major medical journal articles by topic. nlm.nih.gov |
|
| Treatment Information | OncoLink | oncolink.upenn.edu Cancer information by type of cancer oncolink info by type of cancer | |
| Uterine | The Foundation for Women's Cancer - formerly the Gynecologic Cancer Foundation (GCF) | Awareness for preventing, detecting and treating gynecological cancers and supports research and training. 800-444-4441 foundationforwomenscancer.org/ |
|
| Uterine | In My Sister's Care | A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations 212-802-7686, 202-607-1883 inmysisterscare.org |
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| Wigs & Hair | Locks of Love | Hairpieces to financially disadvantaged children under age 18 with medical hair loss. Free, or sliding scale. 888-896-1588 locksoflove.org |
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| Wigs & Hair | Paula Young Catalog | 800-343-9695 | |
| Wigs & Hair | Wigged Out | imWiggedOut.com | |
| Young Adults | Planet Cancer | An online community for young cancer patients (teens to 30s) and their supporters, similar to Facebook and MySpace. Protected website, lots of response to new pages. planetcancer.org |
|
| Young Adults | The Ulman Cancer Fund for Young Adults | Support programs, education and resources to benefit young adults, their families and friends who are affected by cancer. Partner with Imerman Angels. 888-393-3869 (888-393-FUND) ulmanfund.org |
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| Young Adults | Imerman Angels | Peer-to-peer counseling, emphasis on young patients 877-274-5529 ImermanAngels.org |
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| Young Adults | I'm Too Young For This Cancer Foundation | Survivor-led advocacy, support and research organization for survivors and care providers under age 40. 877-735-4673 imtooyoungforthis.org |