Cancer Specific Resources
SUPPORT ORGANIZATIONS (organized by type of cancer) We want to help you find what you need and we try hard to keep this information up to date, accurate, and current. Please let us know if you feel we should revise our list in any way by emailing us at hotline@blochcancer.org QUICK INDEX (click to jump to specific cancer):
- ABDOMINAL / APPENDIX / PERITONEAL
- ADRENAL
- BLADDER
- BRAIN
- BREAST
- CARCINOID
- CERVICAL
- CHILDHOOD
- COLON/COLORECTAL / RECTAL
- ESOPHAGUS / ESOPHAGEAL
- HEAD & NECK
- HODGKIN’S DISEASE
- KIDNEY
- LEUKEMIA
- LIVER
- LUNG
- LYMPHOMA
- MELANOMA
- MULTIPLE MYELOMA
- MYELODYSPLASTIC SYNDROME
- ORAL
- OVARIAN
- PANCREATIC
- PENIS / PENILE
- PROSTATE
- SARCOMA
- SKIN
- TESTICULAR
- THYROID
- UNKNOWN PRIMARY
- UTERINE
ABDOMINAL CANCER / APPENDIX CANCER / PERITONEAL CANCER
- PMP Pals
- 831-424-4545
- www.pmppals.org
- pmppals@yahoo.com
- The PMP Pals Network provides resources for medical treatment, referrals to physician specialists, and support for patients, family caregivers and healthcare providers in 39 countries. Also publishes a quarterly newsletter
- Adrenocortical Carcinoma Group
- www.adrenocorticalcarcinoma.com
- 281-701-5819 (only if they can’t access by Internet)
- Information on treatments, cancer centers that have adrenocortical carcinoma, including names of doctors and links and/or email addresses. Also have a closed group for patients, doctors and researchers accessible by invitation only. Established by the founder of the Beverlin Adrenocortical Carcinoma Research Fund at M.D. Anderson, whose wife had adrenal cancer.
- American Urological Association Foundation
- 800-242-2383
- www.urologyhealth.org
- www.auafoundation.org
- Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs.
- Bladder Cancer Advocacy Network
- 301-215-9099
- 888-901-BCAN
- http://www.bcan.org/
- Connect with others dealing with bladder cancer through an online community, accessible through the website.
- Society of Urologic Oncology
- www.societyofurologiconcology.org
- (847) 264-5901
- Website has an online member referral service
- American Brain Tumor Association
- 800-886-2282 (847-827-9910)
- www.abta.org
- Provides publications on different types of tumors and a booklet, “Primer of Brain Tumors.” Has list of support groups nationwide and list of doctors involved in investigative treatment for both children and adults. Also has pen-pal program for patients.
- Brain Trust – The Healing Exchange
- http://www.braintrust.org
- 617-623-0066
- Information and online support groups for brain tumor patients, families and supporters.
Children’s Brain Tumor Foundation
- 866-228-4673
- www.cbtf.org
- Resource guide (English/Spanish), newsletter, parent-to-parent network, funds research, and co-sponsors phone and internet conferences for families, survivors and healthcare professionals.
- Kansas City Brain Tumor Support Group
- 816-932-6220
- Cancer patients and family meet monthly with professionals and persons who have experienced brain tumors to discuss diagnostic procedures, treatments, common problems, etc. Meets at 7 p.m. on the 2nd Tuesday of the month across from St. Luke’s Hospital in the boardroom of the Specialists in Cancer Care Office, Medical Plaza III, 4321 Washington, Suite 4000, Kansas City, MO.
- Meningioma
- THE MENINGIOMA LIST , for men and men with a meningioma. Hosted by The Healing Exchange BRAIN TRUST. To subscribe go to www.braintrust.org/meningioma.htm.
- MENINGIOMA MOMMAS, an online support group for women with a meningioma. To subscribe, visit their web site at http://www.meningiomamommas.org/
- MENINGIOMA TUMOR LIST, for meningioma patients and their caregivers. This list is run by Johns Hopkins Medical Center’s Radiosurgery Department. You need not have undergone radiosurgery to subscribe. To sign up, visit http://www.radonc.jhmi.edu/radiosurgery/disorders/meningioma.asp Look for the “Connect! Join the Meningioma List” graphic and enter your e-mail address. You’ll receive an e-mail confirmation.
- MENINGIOMA SUPPORT AND INFORMATION LIST, a message board, chat room, and news announcement for those interested in meningiomas. Visit as a guest and register at http://meningioma.webexone.com/.
- Michael Quinlan Brain Tumor Foundation
- www.mqbtf.org
- educational, emotional, financial and spiritual services. The foundation provides financial assistances for Indiana and Kentucky.
- National Brain Tumor Society
-
- www.braintumor.org
- 800-770-8287
- Patient Services: 800-934-2873
- Patient services and support for brain tumor research.
- Pediatric Brain Tumor Foundation
- 800-253-6530
- www.pbtfus.org
- www.curethekids.org
- www.rideforkids.org
- Supports the cause and cure of childhood brain tumors through funding medical research, provides patient and family support, resource and educational materials, advocates for increased awareness, hosts series of worldwide internet conferences to provide information and support to families, and provides scholarships to pediatric brain tumor survivors.
- Breast and Cervical Cancer Project (Show-Me Healthy Women, MO Dept. of Health)
- www.dhss.mo.gov/BreastCervCancer
- 573-522-2848
- Provides free mammograms and Pap smears to uninsured and underinsured.
- Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations.
- Breast Cancer Foundation of the Ozarks, Springfield MO
- 417-862-3838
- 866-874-1915
- www.bcfo.org
- Fax: 417-862-3830
- Breastcancer.org
- www.breastcancer.org
- Medical information
- FORCE (Facing Our Risk of Cancer Empowered)
- www.facingourrisk.org
- 866-824-7475 (RISK)
- Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer. Also has peer-to-peer matching service.
- In My Sister’s Care
- A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
- 212-802-7686
- 202-607-1883
- www.inmysisterscare.org
- Mothers Supporting Daughters with Breast Cancer
- 410-778-1411
- www.mothersdaughters.org
- National organization formed by a mother-daughter team. Publishes a handbook for mothers and a brochure for daughters that are provided to assist these family members in helping each other.
- My Pink Planner
- www.mypinkplanner.com
- Dolores Quinn Kitchin, 816-674-7760
- Free online service that helps friends coordinate meals and other support for breast cancer patients.
- National Breast Cancer Coalition
- 800-622-2838
- 202-296-7477
- www.stopbreastcancer.org
- Action & advocacy group
- National Breast Cancer Foundation
- www.nationalbreastcancer.org
- Founded by breast cancer survivor, goal is increasing awareness of breast cancer through education and by providing mammograms for those in need.
- Reach to Recovery
- Local program sponsored by American Cancer Society, 913-432-3277
- Trained volunteers visit women who have had surgery for breast cancer and will provide information about breast reconstruction for those who request it.
- Nationally, contact nearest ACS chapter or www.cancer.org .
- Share
- 866-891-2392
- www.sharecancersupport.org
- Programs for breast cancer patients and their families, helpline staffed by peer counselors, library, support group information.
- Sisters Network Inc.
- 713-781-0255
- 866-781-1808
- www.sistersnetworkinc.org
- African-American breast cancer survivorship organization, individual/group support, community education, advocacy and research.
- Support Connection
- 800-532-4290
- www.supportconnection.org
- Breast & ovarian hotline and telephone support group
- Susan G. Komen for the Cure
- 800-462-9273 (800-I’M-AWARE)
- www.komen.org
- www.kckomen.org
- www.breastcancerinfo.com
- Triple Negative Breast Cancer Foundation
- www.tnbcfoundation.org
- Information and anecdotal stories from patients/survivors
- Young Survival Coalition
- Group of young breast cancer survivors with affiliates in Kansas City and some other communities.
- Local
- Sami Papacek, 913-742-8846,
- ysckansascity@youngsurvival.org
- Point of Contact Program, Kansas City Matches for patients under age 45
- Renee Thomas, 913-579-4454;
- reneelthomas@aol.com
- National
- www.youngsurvival.org (info on other local affiliates)
- 212-206-6610
- YWCA USA
- (800) 222-4738
- www.ywca.org
- Helps medically underserved women in need of early detection through its ENCORE Plus program, education, breast and cervical cancer screening, and support services.
- Breast Cancer Network of Strength (formerly Y-Me)
- 800-221-2141
- www.networkofstrength.org
- National organization providing informational materials about breast cancer and volunteers who can assist breast cancer patients by telephone. Provides a newsletter and publications. Interpreters available.
- Carcinoid Cancer Foundation
- www.carcinoid.org
- 888-722-3132
- Medical, testing and drug information for carcinoid patients, encourages and supports research and education on carcinoid-related neuroendocrine cancers.
- Carcinoid NeuroEndocrine Tumour Society of Canada
- http://www.cnetscanada.org
- 416-544-8467
- Provides information on carcinoid-specific support groups in Canada and conducts workshops.
- Susan Anderson’s Carcinoid Info
- www.carcinoidinfo.info
- SunnySusan@Cox.Net
- Arizona carcinoid survivor’s site with lots of information, resources, survivor stories.
- Breast and Cervical Cancer Project (Show me Healthy Women)
- KC contact: Marney Robinson, Truman West 816-373-4485, X4005
- Statewide: 573-876-3273
- Missouri Department of Health program provides free mammograms and Pap smears to uninsured and underinsured.
- Not all counties may have providers. Check the website for alphabetical list of providers and a map showing their locations.
- Cervical Health
- Gynecologic Cancer Foundation (GCF)
- 800-444-4441
- www.thegcf.org
- www.wcn.org
- Awareness for preventing, detecting and treating gynecological cancers and supports research and training.
- In My Sister’s Care
- A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
- 212-802-7686
- 202-607-1883
- www.inmysisterscare.org
- National Cervical Cancer Coalition
- www.nccc-online.org
- YWCA USA
- 202-467-0801
- (800) 222-4738
- www.ywca.org
- Helps medically under-served women in need of early detection, education, breast and cervical cancer screening, and support services.
- Candlelighters Childhood Cancer Foundation
- 800-366-2223
- Local contact Pat Brown, 816-234-3266
- www.candlelighters.org
- Organization for parents of children who have cancer, coordinated locally by Children’s Mercy Hospital. Toll-free number provides regional information about camps for children with cancer, support groups for parents and/or children, and educational information.
- Kids Konnected
- 800-899-2866
- www.kidskonnected.org
- Friendship, education, understanding, support and newsletter for kids who have a parent with cancer.
- Kids Cancer Network
- www.kidscancernetwork.org
- Bimonthly magazine (English/Spanish), resource center, pen-friends, prayer network and “your story” sharing area.
- Trish Greene Back To School Program
- 800-955-4572
- www.leukemia-lymphoma.org
- Fosters communication among healthcare professions, parents, young patients and school staff in preparation for the return to school and other activities. Information, including “Touching Lives” resource directory, videos and more.
- Childhood Brain Tumor Foundation
- 866-228-4673
- www.cbtf.org
- Resource guide (English/Spanish), book newsletter, parent-to-parent network, annual teleconference and funds research.
- Childhood Leukemia Center
- www.patientcenters.com/leukemia
- Online copy of Childhood Leukemia – A Guide for Families, Friends and Caregivers.
- Children’s Brain Tumor Foundation
- 212-448-9494
- www.childrensneuronet.org
- www.cbtf.org
- Resource guide for parents of children with brain or spinal cord tumors.
- Children’s Hospice International
- 800-2-4-CHILD (800-242-4453)
- www.chionline.org
- Support and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological and spiritual expertise and information.
- CureSearch National Childhood Cancer Foundation & The Children’s Oncology Group
- 800-458-6223
- www.CureSearch.org
- Supports the work of CureSearch Children’s Oncology Group at more than 200 member institutions. Represents every pediatric cancer program in North America, treating more than 90% of children with cancer.
- Make-A-Wish Foundation
- 800-722-9474
- www.wish.org
- Grants wishes of children with terminal or life-threatening illnesses.
- National Childhood Cancer Foundation
- 800-458-6223
- www.curesearch.org
- Supports pediatric cancer treatment and research projects and provides a network for pediatric cancer specialists. The website offers facts about childhood cancer, clinical trials, links to other information sources, news and events, and a way to search for clinical trial protocols and Children’s Cancer Group Specialists.
- National Children’s Cancer Society
- 800-532-6459
- www.children-cancer.com
- Mission is to improve quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
- St. Jude Children’s Research Hospital
- No-fee care in Memphis, TN
- 866-278-5833
- www.stjude.org
- Starlight Foundation
- 310-479-1212
- www.starlight.org
- Wish-granting, entertainment, education and family activities for seriously ill children and their families.
COLON/COLORECTAL CANCER / RECTAL CANCER
- Colon Cancer Alliance
- 877-422-2030
- 212-627-7451
- www.ccalliance.org
- Treatment information, education and resource information, a buddy system (Connections program) and other information about colorectal cancer.
- C3: Colorectal Cancer Coalition
- 877-4CRC-111 (877-427-2111)
- 703-548-1225
- www.fightcolorectalcancer.org
- Advocacy group’s site includes a guide to diagnosis and treatment options and a range of resources.
ESOPHAGUS CANCER / ESOPHAGEAL CANCER
- Esophageal Cancer Awareness Association
- 866-370-3222 (866-370-ECAA)
- www.ecaware.org
- Provides education, resources and information for people with esophageal cancer, including website newsletter.
- www.eccafe.org
- An online forum devoted to esophageal cancer issues
- Acinic Cell Information Center
- www.aciniccell.org
- No phone number; Edgar Stroke, edgar@aciniccell.org
- A rare salivary gland cancer, comprising approx. 6%-10% of all salivary gland cancers. All salivary gland cancers comprise between 0.3% and 0.9% of all cancers in the United States.
- The most likely of salivary gland carcinomas to occur bilaterally. Occasionally an even rarer acinic/acinar cell carcinoma of the pancreas, or of the lung (most lung versions are actually metastases). There is new (limited) data to indicate that a certain kind of breast cancer (secretory or juvenile carcinoma) is identical to acinic cell carcinoma.
- International Association of Laryngectomees
- 866-IAL-FORU (866-425-3678)
- www.larynxlink.com
- Pre- and post-operation visits to laryngeal cancer patients, continuing support and education.
- Laryngectomy Association – NuVoice (ACS)
- 800-227-2345 (800-ACS-2345)
- Local: Dee Etta, 913-432-3277
- www.nu-voice.org
- Laryngectomees who are trained volunteers and who speak well visit a new laryngectomee in the hospital before and after surgery upon medical referral.
- Support for People with Oral and Head & Neck Cancer
- 800-377-0928 (516-759-5333)
- www.spohnc.org
- Support and information addressing the emotional and psychological needs of oral and head and neck cancer patients and their families.
- Yul Brynner Head & Neck Cancer Foundation
- 843-792-6624
- www.yulbrynnerfoundation.org
- Leukemia & Lymphoma Society
- National: 800-955-4LSA
- Local: 913-262-1515
- www.leukemia-lymphoma.org
- Addresses four diseases: leukemia, lymphoma, Hodgkin’s and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
- Lymphoma Research Foundation Inc.
- 310-204-7040
- www.lymphoma.org
- Educational information and “buddy system” for Hodgkin’s and non-Hodgkin’s lymphoma patients. Quarterly newsletter.
- American Urological Association Foundation
- 800-242-2383
- www.urologyhealth.org
- www.auafoundation.org
- Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs.
- Kidney Cancer Association
- 800-850-9132
- www.nkca.org
- www.curekidneycancer.org
- www.kidneycancer.org
- Written materials, telephone referrals to oncologists and urological surgeons. Website has listings of clinical trials. Sponsors a national patient convention yearly and patient information meetings in 35 major cities.
- Society of Urologic Oncology
- 847-264-5901
- www.societyofurologiconcology.org
- Website has an online member referral service.
- CLL Action Plan
- www.cllactionplan.com
- CLL Action Plan is a patient-focused Web site dedicated to helping individuals with CLL manage their condition at various stages. Created by Bayer Health Care Pharmaceuticals in partnership with CLL experts.
- Patients must register online to use features of the website.
- National Children’s Leukemia Foundation
- In NY: 718-251-1222
- 800-448-3467 (800-GIVE-HOPE)
- www.leukemiafoundation.org
- Comprehensive information; referrals for initial testing, physicians, hospital admissions, and treatment options; stem cell banking; bone marrow matching; dream fulfillment and help getting health insurers to pay for treatment and care.
- Leukemia & Lymphoma Society
- National: 800-955-4LSA (4572)
- Local: 913-262-1515
- www.leukemia-lymphoma.org
- Addresses four diseases: leukemia, lymphoma, Hodgkin’s and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
- American Liver Foundation
- 800-465-4837
- www.liverfoundation.org
- (212) 668-1000
- General information, information on local chapters, but most of the support groups are for hepatitis and liver transplant patients.
- Lung Cancer Alliance
- 800-298-2436
- www.lungcanceralliance.org
- Advocacy for patients, survivors, families and caregivers. Patient-survivor “buddy” matches, quarterly newsletter, information on support groups, and online support group.
- Lung Cancer Caring Ambassadors Program
- www.lungcancercap.org
- Provides information and encouragement to people with lung cancer and their loved ones.
- Lung Cancer Circle of Hope
- 732-363-4426
- www.lungcancercircleofhope.org
- New Jersey-based group developing advocacy and regional educational programs.
- Lung Cancer Online Foundation
- www.lungcanceronline.org
- Funds research and provides information to patients and families via website.
- LungCancer.org
- 877-646-LUNG (1-877-646-5864)
- www.lungcancer.org
- A website operated by CancerCare specifically for lung cancer, with links to information and CancerCare support.
- Lung HelpLine
- 800-548-8252
- www.lunghelpline.org
- Registered nurses and respiratory therapists provide answers about lung disease related issues including respiratory therapy, respiratory home health care, medication counseling, physician referral (in upper Midwest) and more.
- American Lung Association
- National 800-586-4872 (800-LUNG-USA)
- Local 816-842-5242
- www.lungusa.org
- Informational packets, answers to medical questions.
- Leukemia & Lymphoma Society
- National: 800-955-4LSA
- Local: 913-262-1515
- www.leukemia-lymphoma.org
- Addresses four diseases: leukemia, lymphoma, Hodgkin’s and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
- Lymphoma Research Foundation Inc.
- www.lymphoma.org
- Information tailored to patient’s diagnosis, “buddy system” for Hodgkin’s and non-Hodgkin’s lymphoma patients. Quarterly newsletter.
- Mantle Cell Lymphoma Consortium
- www.mantlecelllymphoma.org
- 800-500-9976
- Core information for patients, and a searchable database of relevant clinical trials.
- Melanoma Care Coalition
- 845-398-5100
- www.melanomacare.org
- For medical professionals, a list by region of hospitals with melanoma centers. No evaluation.
- Melanoma Research Foundation
- www.melanoma.org
- 800-673-1290 (MRF-1290)
- Patient information and an online chat room.
- Northern California Melanoma Center, St. Mary’s Medical Center
- 415-750-5660
- www.melanomacenter.com
- Review of new patients’ cases by a Consulting Panel
- Melanoma Patients Information Page
- www.mpip.org
- Has bulletin board, chat room, e-mail links and anecdotal stories about melanoma patients.
- International Myeloma Foundation
- 800-452-2873 (800-452-CURE)
- 818-487-7455
- www.myeloma.org
- Hotline, information packets, quarterly newsletter, seminars, workshops.
- Leukemia & Lymphoma Society
- National: 800-955-4LSA
- Local: 913-262-1515
- www.leukemia-lymphoma.org
- Addresses four diseases: leukemia, lymphoma, Hodgkin’s and multiple myeloma. Offers matching program and educational material. Qualifying patients registered with the organization can receive funds for designated services after other insurance coverage has been used through patient financial aid and co-pay assistance programs.
- Multiple Myeloma Research Foundation
- 203-972-1250
- www.multiplemyeloma.org
- Supports research grants and professional symposiums, publishes quarterly newsletter, conducts seminars, and provides referrals and info packets.
- Myelodysplastic Syndromes Center Foundation
- www.mds-foundation.org
- 800-MDS-0839
- Its international information network provides patients with referrals to treatment centers knowledgeable about MDS, contact names for available clinical trials, sharing of new research and treatment options between physicians, educational support to doctors and patients, and patient advocacy groups.
ORAL CANCER
- Oral Cancer Foundation
- 949-646-8000
- www.oralcancerfoundation.org
- Prevention, education, research advocacy and support activities.
- Support for People with Oral and Head & Neck Cancer (SPOHNC)
- 800-377-0928
- www.spohnc.org
- Support and information for patients’ emotional, psychological and humanistic needs.
- Web Whispers
- www.webwhispers.org
- Support for survivors of larynx and throat cancers.
- Yul Brynner Head & Neck Cancer Foundation
- 843-792-6624
- www.yulbrynnerfoundation.org
- Conversations: The International Ovarian Cancer Connection
- 806-355-2565
- ovcanews@aol.com
- www.ovarian-news.org
- Free newsletter, matching service
- FORCE (Facing Our Risk of Cancer Empowered)
- 866-824-RISK (866-824-7475)
- www.facingourrisk.org
- Provides information on screening and preventive options for women facing a genetic risk of breast or ovarian cancer.
- Gilda Radner Familial Family Registry
- 800-682-7426 (800-OVARIAN)
- www.ovariancancer.com
- Information about risk factors, warning signs and diagnostic tests, plus a family registry.
- Gynecologic Cancer Foundation (GCF)
- 800-444-4441
- www.thegcf.org
- www.wcn.org
- Awareness of ways to prevent, detect and treat gynecological cancers; research support.
- In My Sister’s Care
- A national organization dedicated to eliminating health disparities and improving health status and gynecologic cancer care for women of color and other under-served populations
- 212-802-7686
- 202-607-1883
- www.inmysisterscare.org
- National Ovarian Cancer Coalition
- 888-682-7426 (888-OVARIAN)
- www.ovarian.org
- Brochures about symptoms and treatments for newly diagnosed. Website has a chat room and “Ask the Doctor” section. Education seminars for healthcare providers and forums for the public. Also collects data for research.
- Ovarian Cancer National Alliance
- 866-399-6262
- www.ovariancancer.org
- Consumer-led umbrella group uniting cancer survivors, women’s health activists and healthcare professionals in a coordinated effort to focus national attention on ovarian cancer.
- Ovarian Cancer Research Fund
- 800-873-9569
- www.ocrf.org
- Advances research by underwriting investigations to find techniques for early detection and to aid in development of new therapies. Raises awareness through educational outreach programs, awareness projects and video & resource materials.
- Support Connection
- 800-532-4290
- www.supportconnection.org
- Breast & ovarian hotline, teleconference monthly, 8 p.m. Eastern on the 2nd Wednesday.
- Lustgarten Foundation for Pancreatic Cancer Research
- 866-789-1000
- www.lustgartenfoundation.org
- Patient and Caregiver Education (PACE) program helps link patients and caregivers to community-based services, provides a patient information booklet and operates a clinical trial matching service. Based in Bethpage, NY.
- Michael Rolfe Pancreatic Cancer Foundation
- 312-609-9910
- www.rolfefoundation.org
- Chicago-area support groups
- Pancreatic Cancer-Awareness Matters
- 816-960-9100 (the Lockton Companies), ask for Sherry Ainsworth
- www.cancerbattleplan.com
- Resources, DVD and book on pancreatic cancer
- Pancreatic Cancer Action Network (PANCAN)
- 877-272-6226 (877-2-PANCAN).
- www.pancan.org
- Information and peer-to-peer matching; research, patient support, community outreach and advocacy. PALS program provides patient and liaison services, diagnosis, treatment option and support resources.
- Pancreatica
- 831-658-0600
- 800-525-3777 Information & Counseling Line at U of Colorado Cancer Center
- www.pancreatica.org
- In-depth selection of latest medical information on pancreatic cancer, reviewed by a board of medical advisors. Also, a comprehensive list of clinical trials.
- Society of Urologic Oncology
- 847-264-5901
- www.societyofurologiconcology.org
- Website has an online member referral service
- American Urological Association Foundation
- 800-242-2383
- www.urologyhealth.org
- www.auafoundation.org
- Dedicated to the prevention and cure of urologic diseases through the expansion of research, education, awareness and advocacy programs, including the Prostate Cancer Network.
- Man to Man
- American Cancer Society program
- 800-ACS-2345
- www.cancer.org
- Publishes a quarterly newsletter
- National Prostate Cancer Coalition
- 888-245-9455
- www.fightprostatecancer.org
- Awareness, outreach & advocacy.
- Patient Advocates for Advanced Cancer Treatments
- 616-453-1477
- www.paactusa.org
- Patient package and quarterly newsletter, an association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer.
- Prostate Cancer Foundation
- 800-757-2873 (800-757-CURE)
- www.prostatecancerfoundation.org
- California-based foundation provides information online and in free publications, including “Nutrition and Prostate Cancer.”
- Prostate Cancer Research Institute
- 800-641-7274 (800-641-PCRI)
- www.prostate-cancer.org
- www.pcri.org
- The Institute’s Help Line, staffed by prostate cancer survivors and supporters, helps the patient understand his diagnosis and his treatment options with information from a variety of sources, including the Institute’s medical advisory board.
- The Prostate Net
- 201-342-3202
- 888-477-6763
- www.prostatenet.org
- Its goal is to provide credible and actionable information, using a synergistic blend of cancer survivors, renowned cancer clinicians and researchers and corporate supporters that will enable patients, their families and health professionals to partner in making the choices to assure the best chance for cure and retention of the desired quality-of-life. Website content is also available in Spanish.
- Society of Urologic Oncology
- www.societyofurologiconcology.org
- (847) 264-5901
- Website has an online member referral service
- Us Too International
- 800-808-7866
- www.ustoo.org
- Education and emotional support through a network of groups and monthly newsletter.
- The Alliance Against Alveolar Soft Part Sarcoma
- www.alveolarspsarcoma.net
- (718) 523-7752
- (301) 253-0854
- NORD-affiliated organization with patient registry and information on current treatments and clinical trials.
- Sarcoma Alliance
- 415-381-7236
- www.sarcomaalliance.org
- Guidance, education and support to adult and child sarcoma patients and families, list of sarcoma-specialized cancer centers, discussion board, chat room.
- Sarcoma Foundation of America
- 301-253-8687
- www.curesarcoma.org
- Patient resources, fund-raiser and advocate for increased research.
- Sarcoma.net
- 617-632-5204
- www.sarcoma.net
- News and information about sarcoma clinical trials, educational materials, request online consult with Dr. George Demetri, online host.
- The Liddy Shriver Sarcoma Initiative
- 914-762-3251
- www.liddyshriversarcomainitiative.org
- Support and information, electronic newsletter, fund-raising for research. Founded by Bruce & Bev Shriver, whose daughter, 37, died of Ewing’s sarcoma.
- The Skin Cancer Foundation
- 800-754-6490 (800-SKIN-490),
- www.skincancer.org
- Public awareness, supports research, provides educational materials.
- Lance Armstrong Foundation
- 866-467-7205,
- www.laf.org
- www.livestrong.org
- Society of Urological Oncology
- (847) 264-5901
- www.societyofurologiconcology.org
- Website has an online member referral service
- American Thyroid Association
- www.thyroid.org
- 800-THYROID (800-849-7643), 703-998-8890
- Website lists members by state or country, with subspecialties.
- Anaplastic Thyroid Cancer specialist
- Paul Ladenson, Kimmel Cancer Center, Johns Hopkins University
- (410) 955-3663
- He treated Bloch Cancer Hotline HV Bob Legler
- ThyCa: Thyroid Cancer Survivors Association
- 877-588-7904, www.thyca.org
- Support, education and communication for survivors, families and friends. Raises research funding and holds an annual conference. Website has downloadable low-iodine cookbook and newsletter.
- Armed Forces Institute of Pathology
- 202-782-2100, www.afip.org
- Armed Forces Institute of Pathology, 6825 16th Street NW, Washington, DC 20306-6000
- Case Material Address: Armed Forces Institute of Pathology ATTN: Receiving and Accessions Division (AFIP-RRS) Room G-071, Building #54 6825 16th Street, N.W Washington, DC 20306-6000
- Institute has sophisticated equipment which sometimes can identify previously unidentified primaries. Fill out their form online, or call for specific instructions. Cases from pathologists only, charges apply. Slides not returnable.
- Gynecologic Cancer Foundation (GCF)
- 800-444-4441
- www.thegcf.org
- www.wcn.org
- Awareness of ways to prevent, detect and treat gynecological cancers; research support.
- In My Sister’s Care
- A national consumer organization dedicated to eliminating health disparities and to improving health status and gynecologic cancer care for women of color and other under-served populations
- 212-802-7686
- 202-607-1883
- www.inmysisterscare.org